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Chrissi

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 #1 
Hello, I recently found out that lupus runs in my family.
I have struggled most of my life with what I now know to be some of the more severe symptoms of lupus.
I move around a lot of for work and do not have access to a primary physician where I am located now. I have no idea where to start the process of being diagnosed with lupus. Without a referral I fear it is hopeless.
I wonder if anyone in this community would have any ideas of where I should begin.
Thanks
Robinj

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 #2 
Hard to answer your Q's without some background...........
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Chrissi

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 #3 
Such as please...
Robinj

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 #4 
Well, what kind of symptoms are you talking about? And depending on your insurance policy, you may not need  a referral. High deductible policies generally don't.
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

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 #5 
Hello and welcome. Just because someone in your family has lupus does not mean you have it. Also it is really hard to get a dx. People have seen doctors for years and still do not have a dx yet. You can't just walk into any old doctor and say x amount of people in my family have lupus and I think inhave it to. It doesn't work that way. The last thing to keep in mind is there are 60-80 different AI's out there that mimic lupus
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Chrissi

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 #6 
Hey guys.... so the symptoms are... skin rashes, swelling and pains in my joints for months on end, severe seizures, a kidney condition called hyperkalmia ( is told to me to be a condition that can derive from undiagnosed lupus or other things) extreme weakness and fatigue, and dizziness loss of bearings. And miscarriage.
I am adopted and recently found my blood family, and was told 4 people in the family have died from lupus.
I work in the medical field and consulted a friend who is a physician who has been aware of my past health issues. For the past 10 years or so, since my kidney first failed, I have been put thru all types of testing to find a cause and nothing, no diagnose aside from hyperkalmia. Which was told to be can be managed by diet, and it has some what. When I mentioned the family history he immediately suggested I begin testing for lupus.
I do not have insurance at the moment and have moved far from my medical community. I'm curious really if anyone here know the process of going to a rheumatologist without insurance.
Thank so much for all the response every bit if info I can get helps!
Robinj

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 #7 
I would think you would have to start with a GP for a referral. Since you don't have insurance, you can always try to schedule an appointment directly yourself. You never know.
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Chrissi

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 #8 
Thanks Robinj
Chrissi

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 #9 
Thanks cakelady
Robinj

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 #10 
Let us know how you make out Chrissi 
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
hejost

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 #11 
There is good reason to suspect an AI illness when it runs in the family. I ignored symptoms for years.. I remember first having swellings and pain in the knees when I was about 12. I was eventually diagnosed at 47 with lupus then again with rhupus at 63 when it was found that  had suffered sever joint damage in my feet, hands and wrists. Found after 2 separate accidents to a hand then a foot. I am Rh positive. In the interim  my 1 st child was diagnosed with chronic juvenile poly arthritis at 3 years. She is Rh negative. My 3 daughter was diagnosed with Sharps Syndrome a type of lupus at the age of 12. She is Rh negative.  Follow your instincts..and the best of luck
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HEJOST
Chrissi

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 #12 
Thanks everyone, this has been very helpful and I'm grateful to know there's a welcoming place I can look to for support.
Thanks again everyone!!
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