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amandalynn

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 #1 
I am 26 years old and was diagnosed 2 years ago.I went to school before I was diagnosed to be a dental assistant and after my lupus I no longer can do the daily tasks of a dental assistant because of my joint pain I cannot lean over patient in one position without being in horrible pain. I'm looking to other fellow lupus friends to see what your job is and how you handle it with your lupus. I'm thinking of going into radiology but I don't know the physical demands that that job entails preferably to meet the needs for my family I need to make about 40,000 a year and definitely have health insurance. Please leave what your job is and if you're comfortable with it if it provides benefits. I'm very interested because I'm going to be going back to school within the next year and need to start focusing on what to do! Thank you so much guys!
flowerpower84

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 #2 
Well I was recently laid off last month due to program cuts. I was a case worker. I had benefits. I didn't make $40,000. It wasn't physically demanding everyday but it was mostly emotionally demanding.  People in social services are severely underpaid. I would not recommend that that field Amandalynn. I believe the stress of the job made my symptoms worse. I missed a lot a work and when I was at work, I did not feel good.  It took a year to get this diagnosis.  I worked in that field for almost 10 years.  I was thinking about Health Information Technology. It's not physically demanding, but I don't think you can make 40,000 a yr right out of school. Are you just interested in healthcare? There may be some other fields where they are less physically demanding. Keep looking and continue to take care of yourself!
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yolaa92

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 #3 
there is hope cause let me tell you I have had such a hard time keeping a job because of my lupus I am fine now cause I know how to control myself and my lupus but I am medical biller and part time care giver and it can be hard. have you tried taking fish oil or krill oil to help with inflammation? also taking Aleve but try not to take a lot, as far as finding the perfect job for us lupus folks there is no such think unless we lay in bed all day, try different alternatives for the pain as far as the fish,krill oil or some more prednisone or solumedrol that has helped me??? good luck!!
Robinj

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 #4 
It's possible the lighting in a hospital/ med-dental office will wreak havoc on you.
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jessyrabbit

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 #5 
I am a dominatrix. Set my own hours, great pay and can relieve frustration with a snap of my whip.
DeBartolo

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 #6 
Quote:
Originally Posted by jessyrabbit
I am a dominatrix. Set my own hours, great pay and can relieve frustration with a snap of my whip.


AND, her rates are reasonable  Smiley

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Robinj

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 #7 
Wowzer! whip
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

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 #8 
Wow I always wonder if I could do a job like that

If you went to school for a dental assistant there are other jobs that you can do in the office like answering the phones checking patients in and out etc. If you are working for a good doctor they will work around your illness you just have to ask. Don't let all that schooling go to waste.

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Wornwolfiegirl

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 #9 
Quote:
Originally Posted by flowerpower84
Well I was recently laid off last month due to program cuts. I was a case worker. I had benefits. I didn't make $40,000. It wasn't physically demanding everyday but it was mostly emotionally demanding.  People in social services are severely underpaid. I would not recommend that that field Amandalynn. I believe the stress of the job made my symptoms worse. I missed a lot a work and when I was at work, I did not feel good.  It took a year to get this diagnosis.  I worked in that field for almost 10 years.  I was thinking about Health Information Technology. It's not physically demanding, but I don't think you can make 40,000 a yr right out of school. Are you just interested in healthcare? There may be some other fields where they are less physically demanding. Keep looking and continue to take care of yourself!


oh flowerpower you are so right. Anyone who works in social services is underpaid and very stressful.
Such little value is placed on the business of people. But go and work with people's finances and wow you will be well compensated. Business pays more.
Social Services loses good people daily.
BryanN

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 #10 
I was originally a welder, however, soon figured out that the UV rays off the welding rods were making me worse, I then transitioned into industrial mainentance and found that my body could not take the long hours and all the heavy lifting and pulling required, became very fatigued and threw myself into a few bad flares.  For the last 5 years I have been employeed as a Commercial Construction Project Superintendent.  It allows me to be around a business I like and rarely do I have to deal with hard physical labor.  However, deadlines and budgets do place a lot of emotional stress and sleepless nights; which I blame for my current flare.  My company President called me the other day to check on me and discussed pulling me out of the field and creating a place for me in the office with reduced stress and shorter hours.  I have been very fortunate with the new company understanding my limits and having patients with me during my "low" times.  I have found it very useful over the years to be up front about my "condition" and explain it during the interview process, with regards to numerous Dr. visits and the severe fatigue that usually accompanies Lupus.
snelson8181

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 #11 
I am a special educator - I am a case manager, teacher, superviser of paras, counselor, advisor..to name a few of responsiblities. I love the kids - grades 9-12. In a couple months I turn 56. This job is high stress. I come home exhausted nearly every day. On the other hand, I dont know if I could get a better schedule. I am going to do my best to stay put until I can retire. Anywhere between 4 - 8 yrs. Thankful for the timely school vacations, I would not be able to handle it without the school vacations. I have a good health care plan as well. but it is hard, very hard. I cannot volunteer to do the extra curriculur duties I once did = no more proms, dances, field trips etc... I just cant keep up anymore. And if I do take part in something extra, i pay for it for three to four days afterwards. I have to admit my limits and acknowledge them for reality. It is emotionally hard, but necessary. It is healthier to do this, a healthy mindset is a must. A new way of thinking. I havent completely conquered that yet, but on the journey towards it.
CntryGrl66

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 #12 
I work for a county in California.  I am a medical records technician.  It used to be that I was constantly moving when we used to manage patient charts manually.  NOW it's all electronic and I sit at a desk all day.  That in itself can render me very stiff and hurting.  I try to get up every so often to relieve the stiffness and pain by walking or stretching. 
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Annie  [smile]
Dx'd October 2, 2015
Early Stages of Lupus
barbara152

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 #13 
Quote:
Originally Posted by BryanN
My company President called me the other day to check on me and discussed pulling me out of the field and creating a place for me in the office with reduced stress and shorter hours.  I have been very fortunate with the new company understanding my limits...


I know this post is 2 mos old but it's encouraging to hear about employers who are understanding and willing to work with a good employee. 

Bryan, you also said you have been 'upfront' about lupus in your job interviews...kudos to you for that...it sounds like your honesty got you a job at the right place.  Nice!
barbara152

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 #14 

Quote:
Originally Posted by snelson8181
I would not be able to handle it without the school vacations. I have a good health care plan as well. but it is hard, very hard. I cannot volunteer to do the extra curriculur duties I once did = no more proms, dances, field trips etc... I just cant keep up anymore.


I was a 7th grade teacher, 150 kids/day & 4 years away from scheduled retirement when I was dx'd with an autoimmune condition. (Not lupus then, but similar fatigue). Only those in Education can really appreciate the physical & emotional drain of the job! I would have never have made it if it weren't for my co-workers...the joke was that they would push me around in my desk chair like "Bernie",

Hope you're doing well with your "new way of thinking"...it's something we all have to do to some degree. With my recent diagnosis of lupus I'm trying to figure out my new normal too.

warm wishes

Wornwolfiegirl

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 #15 
I am a socialite, independently wealthy. Never worked a day in my life.  I guess you can say I am a dreamer.
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