Lupus Message Boards
Register Latest Topics
 
 
 


Reply
  Author   Comment   Page 1 of 2      1   2   Next
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,319
 #1 
To Parents of Children With SLE

If you live anywhere in the greater Chicagoland area & would like to explore the possibility of including UVA1 phototherapy in your child's treatment plan, just get touch. We would be happy to offer access to the phototherapy equipment you need to see if it helps. Odds are, and given our experiences with adults, you'll know right away.

Should you decide to pursue this drug-free option for your child, we'll also help you obtain UVA1 home equipment of your own.

Best wishes  [smile]


__________________
Cakelady

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 4,707
 #2 
You are very sweet
__________________
The bond that links our true family is not one of blood, but one of respect and joy in each other's life
Robinj

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,376
 #3 
Great post Anthony. That is what it's all about. If only we could get little DeAnna's family to come aboard! [wink]
__________________
When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,319
 #4 
thanks cake, but this is fairly selfish of me [biggrin]

allow me to elaborate -- as a decades-long, main stream media newspaper reporter, i’ve dealt w/ powerful politicians, wealthy business people, famed scientists as well as sports heros & all manner of star - stage, screen & TV….i’ve been in places & have seen things i never knew existed…& the food is usually pretty good….but the greatest, most fulfilling job i ever had in my life was working in an orphanage right after college.

nothing like working w/ kids in trouble.

& since i’m in a position to help again, how can i pass that up Smiley

just being selfish [smile]


@tink - sadly, am thisclose to giving up on the old folks ... they're just too set in their ways, even if their way ain't workin'

__________________
Robinj

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,376
 #5 
Have to say Anthony that I worked in the dental field for most of my life. The money was great. The docs not so much. It truly got down to marketing and sales. Not anything I signed up for. 
Now, I am working for a mental health agency for special needs kids. Been there for going on 10 yrs. Longer than I ever dealt with the selfish and mostly psychotic docs that I have worked for. I sure could use more money ( two raises in 10 yrs) but I am there for a reason. It is important work when it comes down to it.
When I was a kid, the mentally ill were "put away" in institutions. At least I am contributing in my small way to help some kids get somewhere. After all, they are all we have. [smile]

__________________
When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,319
 #6 
good for you tink [thumb]

in a way, “special needs” are what lupus kids have too…..their little bodies have betrayed them - doesn’t get any more "special" than that.
 
as an aside, working in a psych ward was my 2nd best job ever - just loved strapping those crazy people to their beds after they bit me [nono]

ps - please don’t remind me how well my dentist is paid [rolleyes]

__________________
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,319
 #7 
Quote:
Originally Posted by fifaeasy

Get 8% discount from fifa16shop.com for coins/points. Coupon Code:vipcoins

With 8% off FOREVER at Fifaeasy.com! Coupon Code: cheapcoins .

8% off from salefifa16coins.com! Come to get it now!Coupon Code:GG

Want cheapest and reliable fifa 16 coins? Get 8% off from mmogoogle.com!Just use VIPCODE to get cheapest fifa16 coins &points now! Coupon Code: VIPCODE



putz

__________________
Cakelady

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 4,707
 #8 
Good lord almighty
__________________
The bond that links our true family is not one of blood, but one of respect and joy in each other's life
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,319
 #9 
Quote:
Originally Posted by DeBartolo
To Parents of Children With SLE

If you live anywhere in the greater Chicagoland area & would like to explore the possibility of including UVA1 phototherapy in your child's treatment plan, just get touch. We would be happy to offer access to the phototherapy equipment you need to see if it helps. Odds are, and given our experiences with adults, you'll know right away.

Should you decide to pursue this drug-free option for your child, we'll also help you obtain UVA1 home equipment of your own.

Best wishes  [smile]



~ BUMP ~

__________________
Aussie

Senior Contributing Member
Registered:
Posts: 553
 #10 
Just bringing this to the fore.
Cakelady

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 4,707
 #11 
I agree with you Aussie and I hope you were able to get some sleep the other night. Sending positive vibes to you and hugs
__________________
The bond that links our true family is not one of blood, but one of respect and joy in each other's life
Aussie

Senior Contributing Member
Registered:
Posts: 553
 #12 
Yes, I think it is very important for all lupus sufferers to keep UVA1 out there, particularly since it has proven to help enormously. Just ask Daisyewe, Shutterbug & that 65 y.o. old fella. Hopefully it will help S&L as well.

New members should have the opportunity to learn of its existence & success.

Unfortunately, dancing & prancing around being sugar sweet, as is happening on this board at the moment is of no help fighting this disease. Action & commonsense is what's needed. Freedom of speech wouldn't go astray either.

Cake, thank you I did manage to get to sleep eventually, nearly took up smoking again which I gave up decades ago. Hope you get on top of your new medication dosage as you can't stay in buzz land forever, though it would be nice if we all could.
Robinj

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,376
 #13 
Bump
__________________
When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 4,707
 #14 
No one has heard from Aussie in a while. I hope she is ok. I do know she is seeing a new doctor this month that is like 2 + hours away.



Note: Please excuse any misspelled works or grammar errors. I have CNS lupus and brain lesions and use a program to help me type

__________________
The bond that links our true family is not one of blood, but one of respect and joy in each other's life
Mr. Bun

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 1,096
 #15 
Great bump
Previous Topic | Next Topic
Print
Reply

Quick Navigation: