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LeeLee

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 #1 
Hello all. I've been going to doctors for one thing or another since at least around 5 years old. I started having severe headaches and was told I had anemia. At the age of 5 you have no clue of what that mean you just want the pain to go. I continue to this day get severe headaches, back pain, chest pain only on the left side, severe fatigue that comes and go, dizziness, tingling and numbness in hands and feet, shortness of breathe, burning sensation in the sole of my feet and up my legs at time, gastritis, ulcers, GERD, eosinophilia in esophagus, joint pain, knee swelling, hands shakes and limbs moves involuntarily. I just took my first ANA test through my new PCP which came back High Positive 1:160 speckled pattern. CBC was normal except my MCH and MCHC was low. Followed up with a Rheumatologist for the first time and she did a set of test which the results are:
ANA High Positive 1:80. Speckled Pattern
MCHC and MCHC low
RDW high
Protein, Total. High
Everything else including SCL-70, SM and SM/RNP, SJOGREN SS-A and SS-B and DNA Antibody were negative. I follow up with the specialist on Wednesday but was curious about what others who have and currently looking for answers think. When I first met with the Rheumatologist she threw out Fibromyalgia before running test or finish listening to my symptoms. She said my positive ANA may have been a false positive. So now since it came back positive again I'm curious. And she did say Fibromyalgia want result in a positive ANA. I've been going to doctors trying to find out what's wrong since I've been an adult and I'm 39 now. I had to fire all of my previous physicians because I wasn't getting any where. I even moved to a new state in hope to find answers. Any point of views?

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LeeLee
pianist

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 #2 
There is no definite test for lupus, not even the ANA, so don't read into your lab results. A good, solid lupus diagnosis is based on physical examination, properly taken medical history and lab results. It needs to involve all three. You don't want an incorrect diagnosis because once you're labeled with lupus it is with you for life. For instance, try getting life insurance with the diagnosis. It won't happen except in special situations. Let your rheumatologist do the diagnosing, but the Lupus.org site has some good, reliable information you may want to look at. Don't google this stuff - you won't get reliable information and there's plenty of people that post "facts" for the wrong reasons. 
Good luck. Stick with what your rheumy says.
PS - Perfectly healthy people can have a positive ANA; it's pretty common. 
taffylinden

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I agree with you 100% pianist, except for the insurance part. Unless/until Congress repeals the Affordable Care Act ("Obamacare"), insurance companies CANNOT turn anyone down or charge any more due to a pre-existing condition. Thank heavens for that, anyway!
Robinj

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Actually, Obamacare has no effect on life insurance.
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
LeeLee

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Thanks everyone. I'm actually looking forward to hearing what my doctor have to say tomorrow. I actually want the right diagnosis whether it's Lupus or etc. As far as being a healthy person with a positive ANA that's not me, I don't know if I know what that term means lol. Oh did I mention I've been taking medication for hypertension since I was 17 but the dr wanted to start me on meds around 14. Then I have the resistance kind that I often have to change meds because medicine works temporarily with my BP. Now at the age of 19 my son is taking meds for BP and already had to get his meds increased. Doctors say they don't believe its hereditary but yet everyone who have died including my brother was from HBP. I just really didn't like that my first visit with the Rheumatologist she say Fibromyalgia, I'm sorry but I don't think so. It took me almost twenty years to find out some of my symptoms was from GERD which has already done some damages. Oh did I mention I have some spots on my brain according to my MRI, and some renal artery stenosis. I have battled pain, sickness you name it most of my life but what scares me is keep being misdiagnose and I'm not able to take care of my kids. My vitamin D stay low, I had surgery earlier this year because of inner and outer hemorrhoid which are back. Had this problem the most of my life regardless of laxative. Just frustrated and tired. After 30 plus years you become drain. But I push for my kids.
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LeeLee
pianist

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 #6 
All i mean about the ANA is that it can occur in anyone, even healthy people. Sick people can have it too, but it doesn't follow that they also have lupus. 

Spots on the brain MRI are commonly seen in MS as well as lupus and the symptoms of the two diseases overlap. It will be interesting to hear what your rheumy says. 
LeeLee

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Thanks Pianist I understand. I went to one Neurologist and that was his thought, MS because of the involuntarily movement but he said my other symptoms was peculiar. Since my spots was small and not in the pattern he wanted he ruled it out. Which I'm so grateful. I promised my babies I want stop until I find out, what's wrong, they keep me motivated.
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LeeLee
taffylinden

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 #8 
So sorry, Robin. I assumed she was referring to health insurance. My error.
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