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whill

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 #1 
Hello everyone. This message board has been like therapy to me. I have been extremely fatigue with stiff joints and pain. My body always feels heavy. I try exercises then always feel worse the next day. Im so tired of being tired. I have to take naps during the day, just to get through the day. I find myself crying some times. Does anyone feel this way any suggestions will help
?? I have an appointment with my therapist next week.
meg

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 #2 
Hi Whill.

May I ask, have you seen a rheumatologist and/or had bloodwork done?  

I'm the same way with exercise and even general activity. My husband and I were out looking at houses yesterday, not very strenuous at all, and I was wiped out when I got home.  I walked about a mile in downtown Chicago with my daughter a few weeks ago and that cost me two days.  Very, very frustrating.

Are you seeing a physical therapist next week?  If so, let me know how it goes.  

I'm not sure if I've been any help, but my suggestion is to get to a doctor and go from there.

Mary

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whill

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 #3 
Hi Meg
Thank you for responding to my post. What you described is exactly what happens to me. Sometimes I miss the way I use to be. I had rheumatologist and he made two suggestions: water arobics and metrox chemotherapy medicine. Even though the metrox med is in pill form, I just dont want to deal with the side affects. My brother also has severe arthritis and use metrox for a week with really bad side effects that he stopped. Im taking enough meds. Also I lost my insurance and not able to work. So. (NOTE): Walmart has some of my meds on their $4.00 list. any body without insurance can call Walmart to ask if any of their meds are on the list, I had my primary doctor call for me. Im sorry Im getting back to late but sometimes I get bran fog and forget to do things.
Thanks again.
I hope you are feeling better today.
LibBias

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 #4 
Hi, Whill.

You have some good questions. Many of us face challenges with energy and pain. Only you know how you feel each day. For me, the important thing is to get up and to be as active as I can be on a daily basis. I go to my local gym six days a week. I do something different there every day, depending on how I feel. I always leave there feeling better than I did when I arrived. 

Glad to hear that you are going to see a therapist this week. I hope that the visit is helpful and supportive to you.

Best wishes.
LibBias
Miss.takenbylupus

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 #5 
Whill - I feel extreme fatigue daily. I wish I could suggest what fixes that issue, if I had any idea myself. I tend to feel the best when I have the obligation to go to work, because I'm forced to move and regardless of whether I am fatigued or not, I have no choice on the matter. On the other hand, when I am at home I will literally not do anything with myself because I don't have to and it feels worse then pushing through it.

LibBias - Seriously, 6 days a week at the gym? What do you do there, if you don't mind me asking? The reason I say that is I will go to the odd yoga class when I am limber enough to bend - but that will put me out for the next 7 days. So if you've found something that works that doesn't knock you on your a$$ I would definitely like your advice.  
LibBias

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 #6 

I ride a recumbent bicycle, walk on the treadmill, and do exercises that my PT has given to me. Each of us has our own goals and limitations. Some days are better than others. 
Best to you.
Lib Bias
stmosaic

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 #7 
Hi whill,

I don't know if this will work for you, but I joined a fitness center with a whirlpool and regular pool (both indoors). 3 times a week I do stretching exercises in the whirlpool with bubbles off if I can, for 15 minutes to help with muscle knots/contractions. I cool down in the pool for about 10 minutes, then go back into to the whirlpool with the bubbles on as my massage therapy. Then another cool down. They also have a eucalyptus room that eases my breathing. I have found this routine to be very helpful and have been able to resume a small amount of driving. It is also more cost effective than massage therapy which was minimally costing me $160/month for just 4 sessions. The spa is much less and I can use it as much as I want.

Just do what you feel you can, even if it's just floating in the pool. You'll feel better just having the weight off your joints.
taffylinden

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 #8 
Hi, whill. I have questions. 

1) Has your rheumatologist diagnosed you with lupus? Or do you suspect you have it based on your symptoms?

2) What is the medication you don't want to try because your brother had issues? I looked up "metrox," and it appears to be an antibiotic that isn't available in the U.S., so I'm assuming you mean another medication, maybe methotrexate??

3) If you're unable to work and can't afford insurance, are you eligible for Medicaid?

The others have excellent suggestions, but we could help you more with a few details. 

Hang in there!
Robinj

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 #9 
It looks like this poster has not been signed on since October....
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