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shutterbug

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 #16 
Cake- I was at Stanford Neurology a couple of days ago with the youngest. We are still trying to figure out her issues. Thought of you as I was sitting in the horrible traffic down there.
RufusRick

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 #17 
Rheumatologists are generally extremely cautious diagnosing any kind of autoimmune disorder.  I've had dry eye syndrome, dry mouth, severe chronic fatigue, sun sensitivity, joint and muscle pains, non-erosive arthritis, and positive ANAs and positive anti dsDNA for 7 months and two different rheumies denied that there is any autoimmune disorder in my case.  I know better because I know my body, but getting a diagnosis is very challenging.  You have to be pretty sick and have all the right criteria and have a rheumy that will even bother to investigate whether you meet those criteria (which isn't an automatic thing) to maybe get a diagnosis.  Given the state of insurance and costs, I'm not even sure if it's a good idea to have a diagnosis if you don't have insurance yet.  Lupus and Sjogren's Syndrome will wipe out a bank account in no time.  It leads to a lot of folks going bankrupt.   Dr. Stephen Soloway has a youtube video of his lecture on Lupus and a number of other rheumatic disease lectures on the internet.  I highly recommend his Lupus (SLE) lecture.  It's for medical students but it is very illuminating for patients too.
Cakelady

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 #18 
Shutterbug I told you we have an extra room you guys could have spent the night and headed out early in the morning. I live 17 miles away from Stanford but you got to go over the dumbarton bridge and if there is an earth quake all bridges usually get closed until they check them out. Lord I miss that place. The campus is very beautiful
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shutterbug

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 #19 
Thanks Cake. It was around 5 o'clock on a Friday, so you can imagine. My GPS app sent us over the Dumbarton on the way home. Jim had to be at work st 7 the next morning, so we had to be home that night. I really appreciate the offer. I would like to meet up with you when we have to go down in June. Will text you with the info.
Cakelady

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 #20 
Sounds like a plan. The Dumbarton bridge is the least scariest bridge in the Bay Area. The San Mateo bridge scares the p o o p out of me. It's so long and at one point you are not that far up from the water. Accidents happen and people have landed in the water. My husband has crashed twice on that bridge.

I hope her appointment went well.

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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
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