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taffylinden

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 #16 
Oh, yeah, I'm jonesin' for some Morse! And Cake, I can't lose what I never had! :)

SO...better news on the eye situation: Doc says I'm not out of the woods, but there's definite improvement. I'm SO grateful! I get to go down to using steroid drops every 2 hours instead of hourly. Yay! He said I might never be able to get below 4 drops a day, but whereas a week ago I was chafing at the bit to get it down to 3 or 3, right now 4 sounds pretty good. :) I had to swear on my life I'd call if there's any decline. Gee, he's already figured me out!
Robinj

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 #17 
Like every 2 hrs 24/7?


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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
taffylinden

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 #18 
No, while awake and then if I wake up at night, I'm supposed to put in a drop. When I was rejecting the first transplant, they stuck me in the hospital because I had to have the drops every 30 minutes 24/7 (plus IV's) for several days. Then they let me go home, but I had to set the alarm to wake up every hour 24/7. Studies in sleep deprivation...
taffylinden

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 #19 
I went to the optometrist today to try out the third set of fancy-pants, pricey contacts. Yes, this is the guy who missed the rejection diagnosis. So these contacts were supposed to be THE answer because they custom fit them based on 99 measurements of the cornea. They're certainly my last option. Set #3 was a total bust: no vision in the left, such poor fit in the right the bottom wasn't touching my eye. 

Bottom line, according to him:

1) SOL on the left eye. No way to get me seeing with lenses/glasses.
2) No more refitting on right eye. Best bet is #2, which I can only wear for a few hours on some days due to pain.

 I told him I haven't been able to wear the right one for weeks, and he said, "Try not wearing it for a few days." ????

The Salt Lake City surgeon's plan was to fix the left eye with a new transplant so I could see out of it when I got another transplant on the right eye. So if I'm SOL on the left, I'm SOL on getting the right fixed. Glasses are not an option in my case for various reasons. 

Optometrist basically washed his hands of me. Said to talk to ophthalmologist. Ophthalmologist referred me to optometrist because he said I was out of options. Do you see a pattern here?

Me, too.



Mr. Bun

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 #20 
awesome.

medical care at it's finest!

I'm sorry Taffy.
darla627

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 #21 
taffy glad to hear you're down to every two hours on the drops and sorry to hear that the contacts didn't work out maybe when your left eye gets better something will work out I'll keep you in my prayers
taffylinden

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 #22 
Thanks, Bun and Darla. They expect the vision in that eye to improve slightly over the next few months and after the stitches (invisible) come out in late June. However, the contacts still won't work. I don't understand it, myself.

My cousin died this morning, so I'm kind of a wreck. I hope to go back to Chicago for her services, but this vision stuff may keep me grounded here. 
Mr. Bun

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 #23 
Sorry to hear of your cousins' passing Taffy.    In Chicago no less.  :(

xoxBun
darla627

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 #24 
taffy I am so sorry to hear that specially when you're going through that with your eyes I hope you get to go so sorry for your loss
taffylinden

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 #25 
Yes, she was only four years older than I, and we were close growing up--you know, big Italian family and all. She had radiation for Hodgkin's 20 years ago, and apparently it caused scar tissue that kept growing? Anyway, she had a minor stroke 4 years ago due to scar tissue in her carotid artery, and then she started having heart issues. She's been in and out of hospitals. Two weeks ago, docs discharged her without a diagnosis, and she quit breathing in her daughter-in-law's car in the hospital parking lot! She had another incident at home a few months ago, but her daughter, 26 and living with her mom because they were so close, caught it in time. This time, she died in her sleep. 

So ANOTHER person who died in his/her sleep in Chicago. I grew up there, and I love going back, but it's so far away, and I don't know about traveling with all this eye stuff. I don't know when services are yet.

Anyway, thanks so much for caring. 
Robinj

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 #26 
My condolences Taffy.
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
darla627

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 #27 
sounds like she really went through a lot I'm sure she was tired my thoughts are with you taffy
taffylinden

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 #28 
Thank you, Robin and Darla. Her body was tired but was getting more energy, and her spirit wasn't tired at all. She wanted to live. Her body couldn't do it. 

I can't go to the services. Her kids arranged for the funeral to be Sat urday, as in day after tomorrow. I looked at airfares, and the cheapest were almost $1500. So with that and eyes, I can't go. Instead, I'm going to compile a list of 25 good memories I have of my cousin. I did a list of 100 for my mom before she passed and one of 50 for one sister, and they liked them. I know I loved to hear stories from my mother's childhood, so maybe this will be a comfort.

I miss her.

P.S. I almost lost it because the stupid censor thingie said I had to remove certain letters(from the t through the d)  from the day of her funeral. Why can't we have a grown-up censor instead of this kiddie one that looks for letters within words? 
Baker1

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 #29 
Don't airlines still give special fares for situations like this? I could be wrong, but it wouldn't hurt to call a couple of the airlines too see what they have to say.
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"I was chasing my dreams, but tripped over reality and busted my head on the truth."
wings65

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 #30 
Taffy, so sorry for your loss. Your list of memories sounds like a very good idea. We did something similar, including photos, when my mother passed. It lightened the somberness of the occasion, which led to a lot of laughter and stories being told.
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