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EGJ1981

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 #1 
Hello,

I'm waiting for my doctor to call me but in the meantime have received test results via an online portal.  I was referred to an allergist because occasionally, when I am in the sun, I feel like my skin is on fire and it itches terribly. It looks like I have the worst sunburn ever.  Usually within 20 minutes of being inside, it goes away.  It also doesn't happen every single time.  I had my first child in December and this started in the spring. I chalked it up to pregnancy changing something or an allergy.  In addition to allergy testing, she ran the following tests.  I'm wondering if anyone can help me interpret these.  I know that nobody on here is a doctor and that I need to speak to mine.  I just was hoping for some insight.  Everything I have found has led me here.  Thank you!

ComponentStandard RangeYour Value
ANTINUCLEAR ANTIBODIES DIRECTNegativePositive
ANTI-DNA (DS) AB QN0 - 9 IU/mL10
Negative <5
Equivocal 5 - 9
Positive >9
RNP ANTIBODIES0.0 - 0.9 AI<0.2
SMITH ANTIBODIES0.0 - 0.9 AI<0.2
ANTISCLERODERMA-70 ANTIBODIES0.0 - 0.9 AI>8.0
SJOGREN'S ANTI-SS-A0.0 - 0.9 AI6.0
SJOGREN'S ANTI-SS-B0.0 - 0.9 AI<0.2
ANTICHROMATIN ANTIBODIES0.0 - 0.9 AI<0.2
ANTI-JO-10.0 - 0.9 AI<0.2
ANTI-CENTROMERE B ANTIBODIES0.0 - 0.9 AI<0.2
SEE BELOW Comment
Autoantibody Disease Association
------------------------------------------------------------
Condition Frequency
--------------------- ------------------------ ---------
Antinuclear Antibody, SLE, mixed connective
Direct (ANA-D) tissue diseases
--------------------- ------------------------ ---------
dsDNA SLE 40 - 60%
--------------------- ------------------------ ---------
Chromatin Drug induced SLE 90%
SLE 48 - 97%
--------------------- ------------------------ ---------
SSA (Ro) SLE 25 - 35%
Sjogren's Syndrome 40 - 70%
Neonatal Lupus 100%
--------------------- ------------------------ ---------
SSB (La) SLE 
10%
Sjogren's Syndrome 30%
--------------------- ----------------------- ---------
Sm (anti-Smith) SLE 15 - 30%
--------------------- ----------------------- ---------
RNP Mixed Connective Tissue
Disease 95%
(U1 nRNP, SLE 30 - 50%
anti-ribonucleoprotein) Polymyositis and/or
Dermatomyositis 20%
--------------------- ------------------------ ---------
Scl-70 (antiDNA Scleroderma (diffuse) 20 - 35%
topoisomerase) Crest 13%
--------------------- ------------------------ ---------
Jo-1 Polymyositis and/or
Dermatomyositis 20 - 40%
--------------------- ------------------------ ---------
Centromere B Scleroderma -
Crest
variant 80%
DeBartolo

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 #2 
[wave] ok, we'll take a crack at it....

...well, looks like you’ve tested pos. for scleroderma, which along w/ lupus & polymyositis are the 3 autoimmune disorders that make up what they call Mixed Connective Tissue Disease.

tell me the muscles in your hips &/or shoulders have ever acted up & we’ll confirm the DX [biggrin]

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EGJ1981

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 #3 
Thank you DeBartolo!  My hips and shoulders actually hurt quite often.  I figured it was due to being overweight and muscle issues.  My hips hurting, I actually have been attributing to lingering pain from childbirth (even though my daughter is 8 months old).  So you think it would be scleroderma?  I had never even heard of this until yesterday.  I thought I was just getting run of the mill allergy testing.
EGJ1981

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 #4 
Is there ever a time where you can have photosensitivity with scleroderma?  
DeBartolo

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 #5 
you're welcome, but sorry i wasn’t more clear.

polymyositis would explain the muscle involvement.

think your photosensitivity/rashes would be the lupus, not scleroderma,...a hallmark symptom of that is thickening of the skin, but it can also be systemic & effect organs.

would suggest you ask dr google your MCTD Q's cause that's not discussed much here [comp] & if you asked me any Qs, that's who i'd be asking...LOL.

best.

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EGJ1981

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 #6 
So if you were going to put a bet down, would you put money on lupus and polymyositis?  I'm sorry, I know I'm being so annoying.  I just didn't see any of this coming and my allergist won't tell me much.
DeBartolo

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 #7 
no, i’d put money on Mixed Connective Tissue Disease (MCTD) - that way, i’d be covered for lupus, scleroderma & polymyositis, cause that’s what MCTD is, a combination of lupus, scleroderma & polymyositis, all in one patient.



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Robinj

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 #8 
Now I am intrigued. Whats the difference between MCTD and CREST?
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
DeBartolo

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 #9 
i’ve seen the name CREST a few times but never knew what it was til you just asked & wiki told me.

it's amazing all the crazy nasty ways your immune system can screw you over...



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EGJ1981

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 #10 
Thank you so much for your help!  It's hard seeing these results and having to wait for a referral.  
Josephine

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 #11 
hi I am Josephine, I am new here since your results dated 2015 how was he? bc my lab results is exactly the same as yours what do you think my diagnoses it's
thx mn
Robinj

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 #12 
Hi Josephine
This is a really old thread.
You might want to explain what is going on with you.
Welcome to the board. 

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Josephine

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 #13 
thank you! I have been diagnosed with CCCA alopecia.A blood test show ANA positive.Isaw a rhumatologue more tests have being done now I have the result on my hands that looks just exactly with junior member posted 2015 so I wanted to know was wondering what was the prognosis
Robinj

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 #14 
Ok so you have alopecia? Do you have other skin issues as well?
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Josephine

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 #15 
no I don't have any other skin disease
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