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Robinj

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 #61 
I didn't think two people could have the same name
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

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 #62 
Maybe we should let the moderator know there is a flaw in his system. We wouldn't want somebody else joining has cakelady or Robin J on Mr. Bun and heaven forbid Anthony
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Robinj

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 #63 
Good point Cake! i never thought of that....
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Mr. Bun

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 #64 
well....I didn't think that was possible.....usually it says that name is taken.  and you have to add a number or something.


Good idea CupCake....maybe with the last updates something went kerflooey.
Robinj

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 #65 
"Are you responding to my last post?   Sky"

Well, yes. I guess we are. Are you new here? If so, WELCOME!! smiley: Dancegirl2 - keystrokes: :girly

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

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 #66 
I guess I will send an email I don think the forum can handle 2 RobinJ's :)


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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
Robinj

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 #67 
Really Sky? Even stranger is all your other posts were deleted, as well as some of my responses and a few others..... how could that happen????

Not sure exactly is going on, but I am all set with the games. Enjoy.

Man! I HATE being lied to for no good reason. Whatever.

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

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 #68 
Well I reported the problem and the fact that when we responded to your post our posts were deleted. I take time out to respond just like Robin and others. It really is a slap in our face when we spend time to answer questions or post things just to have them deleted. And yes sometimes we like to have fun and go back and forth it's called chit chat and there is a real need for it.
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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
Sky

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 #69 
I don't have the capability of deleting anything of yours. I think it's a good idea for you guys to contact the moderator. Maybe then you can clarify your question regarding my information. Do you really think I'm on this site to play games??? I didn't lie. Seems like you have nothing better to do than stir up trouble.
Leave me out of your little games. This message board is a lupus board chat. People here are sick and looking for answers or just want to be heard, please abide by that.
Again, by all means, contact the moderator if you feel that strongly about me.
Mr. Bun

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 #70 
Gosh!

I've forgotten my password many times......and reset it countless times over the past couple years.

I guess I just got lucky.....or......maybe there is a glitch in the software here?  that's a pretty scary thought! 
Sky

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 #71 
My posts were the only ones meant to be deleted. Not anyone else's posts.
Robinj

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 #72 
"Seems like you have nothing better to do than stir up trouble. 
Leave me out of your little games. This message board is a lupus board chat. People here are sick and looking for answers or just want to be heard, please abide by that. "

What are you talking about??????????????????????????
This is your game of deleting posts. For crying out loud. This is INSANE.

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Cakelady

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 #73 
I am getting a headache and I am kinda scared. What if someone comes on has me we cant have 2 Cakelady's heaven forbid we have 2 RobinJ's
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taffylinden

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 #74 
I'm sorry. I know I'm missing some stuff (like a few screws). I didn't read all the posts on this thread, and I should have. Now some of them are apparently gone, so I'm just guessing as to what went on. And I'm a little scared to respond to Cake's and Sky's replies to my post about my worries because I have no idea what's going on, and I don't want to jump in and screw things up, hurt someone's feelings, or tick anyone off. So may I just generally say a heartfelt thank you for your concern?

Cake, I won't be eligible for Medicare for quite awhile yet. I took early retirement, thinking I could live closer to my kids and to medical care (Hah. Like THAT part worked out.) I thought I could have that huge eye surgery last summer and recover, get another transplant (#5 altogether) on the right eye once the left was seeing well, and then find another job. It takes a full year for the vision to stabilize after a transplant, but I figured I'd be seeing well enough out of the left eye to get the right eye surgery over with around now and get a job this summer. 

Life did not cooperate. I'm pretty miserable physically, and I really cannot see very well. But I don't think I qualify for disability. Not that I'd apply. Even if I swallow my pride, to me disability means I've given up and am resigning myself to the idea that this is my life for good. I'm not ready for that.

I'm not sure the AHCA will pass the Senate. I wish they'd fix the bugs in Obamacare instead. Nobody who's not wealthy should be paying as much as some people had to pay. I think fewer people would be bothered by the individual mandate (must have health insurance) if they got cheap, reliable, comprehensive insurance out of the deal. By the way, I think disability is fine for other people. So is Medicaid.
Mr. Bun

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 #75 
Taffy?

Had a big dose of pride myself.  Unloaded 6-7 trucks a day, lifted 50-70lb cases all day long, hit the ground running at the start of my shift and finally sat down when I got home after 9 hours.  I did that....for over 31 years.  and for about 8 weeks.....I did it with a broken hip, using a cane.

Probably should have tried for disability a few years ago......but it had this stigma attached to it.  Unless you were in a wheelchair.....you were a deadbeat.

I finally realized (and my sister beat it into my head lol) that I was killing myself.....trying to put on a brave face.  And even while going through the application process......I said to my sister, a couple times, that I should just go back to work.  Losing one's friends, facing being evicted and shopping at the food bank sure takes it toll on your mental state. Throw lupus and a bunch of other illnesses into the mix......it's h ell.

There is also the worry of being denied.  Countless people are denied rightful disability claims....simply because a desk jockey was "saving the company money" by denying sick people.  Appeals are through the roof here in Canada......some taking up to 3-4 years to resolve.  In the meantime?  People lose their savings, homes, cars...... & hope.

I got to a point.......when I started bleeding uncontrollably at work.  And had to ask a customer for help.  That scared the p00p outta me.

What I'm saying, I guess, is that when the time comes for YOU, you will know it.  There are some days when I feel good and think I am not deserving. But many, many days.......too many.......tell me I am deserving.

Health-care in the USA is scary to me...I don't know all the ins and outs.  I hope things work out well for you now and also if/when the time comes for disability.

Take care.


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