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debs

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 #1 
Hi!  I wanted to introduce myself.  I've visited several times over the past few years, when I needed some reassurance or information, but hadn't joined until now.
I was diagnosed with SLE a few years ago (as well as other diagnoses throughout the years) but have been symptomatic for decades.  I will be 59 in a few weeks and have been off work since 12/31/15 due to illness and my inability to keep doing what I always did...I realized I was declining at a rate that I couldn't handle and decided it just wasn't worth it.  I've been rejected for SSDI 3x and am waiting for a hearing (prob another year, I'm told).  I'm on my 2nd appeal for short- and long-term disability from my job (recvd. for 4 mos., then abruptly denied).  I've tried and tried to remain optimistic and positive as I go through these processes, but am quietly losing the ability to keep my head up.
I don't understand how people are expected to survive without assistance.  I'm confused on what alternatives we have when denied.  I'm frustrated that my conditions are chronic.  I experience symptoms every single day of the year, whether from lupus, fibro, celiac, blood pressure, gastro problems, or something else.  I don't understand the concept of a flare other than some days are worse than others.  Does anybody else experience their illness like this (more of a daily occurrence than a flare)?  I'm a new grandmother as of almost 6 mos. ago and super frustrated that I'm limited sometimes on how I can interact with him.  AUUGHHH
Sorry to vent, but getting super frustrated with this.  Been laying low since Monday and am over this whole thing.  Thanks for listening.  I look forward to being a more positive contributor, but today is just not the day for me.
Thanks!

upstater

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 #2 
Hi...sorry to hear that has been such a process for you.

We deal with Social Security a lot where I work, as we support an intellectually disabled population. I know our benefits specialist feels that many of the SSA's decisions are kind of random. And that unless you have new/different/compelling info to present, they usually don't change their minds. However, even though it is a federal program, there may be differences by district.

I do know that there are attorney's that specialize in helping people with Social Security Disability. Of course, there is a cost to that, so you'd have to weigh that out. But you might be able to get a consultation free of charge, as to whether they think you have a "case".
debs

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 #3 
Hi...thanks for the response!
Yes, I knew it would be a process so went with a SSA attorney right from the beginning.  I was assured it was a solid case and would be approved, just not able to say when.  Well, apparently it's at the end.  I understand that this is perfectly normal, but still frustrating.
Thanks!
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