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kristena

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 #1 
Hello

I had testing done as I am worried I have lupus. My maternal grandma had Lupus so I thought it was important to get tested especially with the long list of symptoms I have. Can anyone give me some insight and offer some light on to further testing I can ask my doctor about?

I have also had a disc like rash spread on my breasts and it had been there since July. But because it's not in a photo sensitive area he didn't seem to think it was connected. Though I seen many Lupus rash pics on the trunks of the body that looked similar to mine.


ANA SCREEN POSITIVE
ANA PATTERN SPECKLED
ANA TITER 640
DNA antibody negative


Some of my symtoms:

Extreme fatigue
Butterfly rash
Periods of some hair loss
Unexplained rash
Pimple like rash on scalp/arms seems more so after sun exposure
After sun exposure I have had periods where I feel weak, faint and exhausted
Unexplained nail ridges (across the nail bed) they just continue to grow ridged
Sore achy hips, knees, knuckles, ankles, feet, spine


Robinj

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 #2 
Sunscreen, sunscreen, sunscreen!!! Sun avoidance is key. High SPF sunscreen, long sleeves, hats etc.

This is a great and reliable website for info:
http://www.hopkinsmedicine.org/healthlibrary/conditions/arthritis_and_other_rheumatic_diseases/systemic_lupus_erythematosus_lupus_85,P00058/

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taffylinden

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 #3 
What Robin said, plus if you're not already seeing a rheumatologist with experience in treating lupus, ask your primary care doc for a referral. Lupus is a very complex disease that is tricky to diagnose. You need an expert. Best of luck! 
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