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Robinj

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 #1 

Medication adherence was poor among patients with systemic lupus erythematosus (SLE), a systematic review revealed.

Among 11 studies identified in the literature, the percentage of SLE patients who did not consistently take their medications ranged from 43% to 75%, according to Mary A. De Vera, PhD, and colleagues from the University of British Columbia in Vancouver.


http://www.medpagetoday.com/rheumatology/lupus/62732


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Baker1

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 #2 
Those are the people who wonder why they don't feel better. Then they probably go to another rhuemy because the first one isn't helping them.
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taffylinden

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 #3 
How many patients take their meds seems less important than WHY they don't take them, don't you think? I read the article and some of the articles used in the study, and the truth seems to be that patients are neither lazy nor stupid. Here are the reasons I culled from the articles:

--mental illness, including depression. That makes sense, doesn't it?
--education level (which may have affected understanding directions)
--polypharmacy: in other words, you're taking a LOT of other meds, possibly including drugs that don't interact well. 
--intolerance. If every time I took a med, I got a blinding headache, I'd be tempted to go off it or delay taking it, wouldn't you? When the cure is worse than the disease, most of us would get off the cure, I'd think.

Right? Or am I missing something?


slyster

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 #4 
No, people generally aren't lazy or stupid.  

Taffylinden cites a lot of good reasons for non-adherence.

Generally-speaking, I think it has to do with frustration.

1) Frustration that it doesn't seem like it's helping, and
2) Frustration with the IDEA of taking a load of meds at certain times every day.

It boggles my mind that a lot of lupus patients just "wing it."  And it boggles my mind even more that they are skeptical of modern medicine and think they can figure it out on their own.

They need one of those S-M-T-W-T-F-S organizers or a Sara Gorman's Pillbag.  You're playing with fire if you don't take your meds when you should.
Cakelady

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 #5 
I have one of those organizaer and they do help however there are times i have to make myself to take my meds and do my breathing treatments. In addition to taking meds 3 times a day I have to do 4-5 breathing treatments. I am also supposed to take my BP once a day and check my O2 levels. It gets to be way to much at times and you do feel like giving up.

There are a lot of times I would like to through them all away and what happens happens

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shutterbug

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 #6 
It gets overwhelming sometimes and I'm sure that at some point or another, we all have been tempted to chuck them all out. I'm currently weaned off one more medication. Not because, it wasn't working or that I wasn't taking it. I had to stop taking it because my PCP moved and I didn't have a new one lined up. My old PCP left enough refills with the pharmacy to buy me some time to find a new doctor. The pharmacy refused to honor them because the doctor was no longer providing my care.
Mr. Bun

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 #7 
maybe.....some have to decide between paying their rent....or paying for meds......
Mr. Bun

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 #8 
Been there...when I was trying to get disability
Robinj

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 #9 
Well here is my opinion on the entire Obamacare situation... And I will try to be neutral....

It worked for some, not for some and certainly not for all. I have heard horror stories about folks having coverage, getting pushed off to other providers at a cost of 3,4,5 X more.

Leave the politics out of it and give the man a chance to fix this mess.

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Mr. Bun

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 #10 
Yes.... I agree Robin.

From what I Heard it was a cluster f@ck....and will take time to fix.
Robinj

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 #11 
Luv ya Bun
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
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