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CBK

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 #1 
Diagnosis with Lupus in April then pregnant in May. Thus far pregnancy has been ok. Joint pain has increased a bit, i thought it was just my Lupus. Then i came across a pregnancy form that says joint pain, stiffness, and things are associated with a hormone during pregnancy called Relaxin. Ok, this eased my concerned except for the back shoulder pain that will have me in tears if i position my arm certain way or breathe too deeply. I plan to see my Obstetrician-gynecologist next week. But should I see someone else about it? And who?
Mr. Bun

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 #2 
Hi CBK,

I would talk with your OBGYN first.  Explain your diagnosis, see what she wants to persue. She should calm your fears by monitoring you, while being prepared to consult specialists as needed....or the other doctors who care for you.


And being diagnosed, do you mean a by a Rheumy?  and are you under the care of a rheumatologist presently?  They should be suggesting a course of action for you.

By the sounds of it, you are at least 6 months pregnant.  Have you not discussed these things with your doctors?  You need to.

Take care,

Bun

Robinj

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 #3 
Good advice Bun!
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Smith&Lesson

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 #4 
Congrats CBK! :)

you should be labeled a "high risk pregnancy" but don't let that scare you; it just means they'll keep a closer eye on both of you.  Your rheumy and ob/gyn should be working together to care for both of you.  My youngest is 2 1/2 now and bc I was not dx'd until after he was born, I was able to blame most things on the pregnancy itself.  Outta' my 3 pregnancies, this last was the hardest (of course, now I Know Why though). Now that I know all to well what a flare is, I was indeed flaring off an on --but, those were nothing compared to the flares I have now... That lil growing baby inside you will give you source a strength you never thought possible, and you will make it through. Are you having a Boy or Girl???

Please tell me you have family and a support system for after the baby arrives though.  It is really rough w/o one, and I wouldn't wish that on anyone!  Good luck Darling!  Please keep us posted. <3


Cakelady

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 #5 
Hi CK I was dx with lupus while pregnant and my pregnancy was not the greatest. My daughter arrived 7 weeks early and spent time in the NICU. Having said that my sister also had lupus and was dx before me. She had 3 uneventful pregnancy's. So let your doctors know what's going on.
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steffaneykthomas

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 #6 
Hi! I was diagnosed in pregnancy and it was not good at all. I was incredibly sick and spent tons of time in the hospital. However I'm now almost half way thru my second pregnancy and it's way different. I'm being followed closely by my rheumy and ob. It is labeled a "high risk" but so far everything's been good. You should definitely see a rheumatologist about your concerns. I'm an ob nurse and that doesn't sound "typical" but there are blood tests that they can run to determine if it's caused by the lupus.
redpaki

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 #7 
I was dx'd years after 2 pregnancies but due to the problems I had, my ob/gyn tested me for lupus several times (although it didn't show up for 20+ years).  Both of my sons were born 6 weeks early - one due to placental problems and the other due to low amnio fluid and pre eclampsia (?).  I also blew out my back for my 2nd pregnancy.  Note that I was an older mom (35 and 40) and both of my boys are great now, 20 or so years later.  Now, I was also dx'd with antiphospholipid at the same time as lupus and that caused great problems for my SIL when she was dx'd during pregnancy.  Many miscarriages but one to term.  I had no miscarriages (that I knew of).  So, don't get disheartened, maybe my story sounds scary but  I have 2 wonderful kids and medicine today is more advanced so things should be even better.
CBK

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 #8 
Had the baby!!! She!! came 8 weeks early. Thank God, she is developed and doing well at 2 months now. I went into preeclampsia. I havent been told why. I am going to see my Rheumy (once I finally make an appointment) just for a check in. I tend not to bothered with my Rheumy because I feel like she just wants to give me drugs. I wish natural medicine was covered by insurance. I'm nursing and do not want to take any new meds beyond the plaquenil  
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