Registered: 1472501620 Posts: 39
I have been struggling with concentration, focus, memory, and just being organized in general for about the last year and a half. It's been quite distressing and my boss, coworker, and friends have said things to me about it. I also sort of zone out at times. A year and a half ago is when my auto immune stuff really came to a head and was also when migraines became so bad I eventually had to go on topamax. I saw my PCP and she is referring me to a psychiatrist for an evaluation for ADHD. The rheumatologist thought the symptoms I described were related to the side effects from topamax, but I tried coming off the topamax and the migraines are just too bad. The neurologist thought my issues were just a lupus fog and indeed, and I do go through periods of time where I feel like I am underwater or in the clouds and things are in slow motion, but I just now have this overall inability to concentrate, be organized or focus. Is this a common complaint? I am going to see a psychiatrist. Is it unusual for people with lupus to end up with an ADHD diagnosis and meds too?
Registered: 1486503899 Posts: 158
tree hugger 71 I have been diagnosed with ADHD and then they took that diagnosis away and gave me bipolar with major depressive disorder and I suffer from the same problems that you're describing so yes I feel lupus can bring on the symptoms yes I was functioning without these symptoms before the lupus flare started
Registered: 1490110144 Posts: 56
Treehugger, curious if you had difficulty in your earlier years that you are aware of. Not sure if lupus triggers ADD but it sure is worth looking into. And also mentioning topamax as a possible side affect is worth looking into. I know what you mean about focusing and organization. I have that problem as well. I've had ADD (inattentive type) not ADHD ( hyperactive.) there are many types of ADD. Hope you can get some answers. It is frustrating I'm sure.
Senior Contributing Member
Registered: 1419730148 Posts: 1,002
I actually DID see a psychiatrist about possible ADD. That was before I was diagnosed with SLE. I was so forgetful, and I couldn't focus on anything for long--bad for a teacher--so I thought ADD was the answer. I didn't have it. She even put me on a trial of meds, and they didn't help. I also had migraines every 24-48 hours. Topomax didn't work for me. But I do think the attention issues and the migraines are related to lupus, at least for me.
Registered: 1490230191 Posts: 215
I don't actually know anything about lupus fog or cognitive issues related to autoimmune issues. I have read about it as an issue.
I know sometimes I feel like I am a bit foggy....or my recall isn't as good as it used to be. However, I am also at a "change of life" period.....and those kind of issues are often attributed to that, as well. I'm also a bit anxious at times, and that doesn't help either ;-)
Registered: 1472501620 Posts: 39
Thanks for the replies. I don't recall having any major issues in younger years, maybe some mild inattention, but nothing like this. I cannot hardly read anymore, which was always a favorite hobby of mine. I plowed through books. I literally lose up to an hour at a time. I will not know what happened for an hour, what I was doing, how I spent that time. It is terrible, I hate it. It is a real problem, not accomplishing things.