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StayPositive

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 #1 
Hi, I am Male, 28. Recently I have been experiencing needle pain all over my body, hand, leg, stabbing pain on knee, elbow, all these pain are fleeting pain that last only 1 or 2 seconds that come and go once in a few minutes or once in an 1 or 2 hour. Also I experience tension/tightness at the back of my head. This has been almost 2 months already. Recent days, I am also feeling fatigue. So far I don't have rash, no ulcer, blood count check all normal.

But I was tested positive for ANA, below are lab result for ANA

Speckled, titer 1/320 --> anti SS-A, anti SS-B
Possibility : Sjogren's Syndrome, SLE
Cytoplasm granule --> anti ribosomal P protein
Possibility : SLE

Anti ds-DNA 4.0 IU/mL Reference number : 0 - 100
(negative)

I have consulted with an internal specialist, she said likely I have SLE. But I want to get tested in more specific to confirm it before I started the treatment, I am going to consult further with another internal specialist or Immunology specialist. The Anti ds-DNA still shows negative. Recently I have also been infected with bacteria and also took some strong HIV drug as Post Exposure Phropalaxis (PEP) after potential exposure to HIV, but eventually I am still tested negative for HIV after 3 months. All these symptoms happened after I finish this 1 month drug. I also have twice of hepatitis B vaccination booster, 1.5 month and 2 weeks before the ANA test.

Can anyone tell me does that result on that lab test is confirmative I am positive for SLE ?

I am not sure if the drug/bacteria infection cause me to have positive ANA rather than the SLE ?

I had experience severe stress/anxiety due to potential HIV exposure, I am wondering if this is fibromyalgia ? But my ANA show positive.

I am going to ask for urinalysis for protein/blood, anti-sm test, what else should I ask for ?

Also I only pay for ANA test, but the result also shows that anti SS-A, anti SS-B. Does that mean they also tested positive for anti-SS-A/B ? Does it usually show SS-A and SS-B when we tested for ANA ?

Thanks
Robinj

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Posts: 3,497
 #2 

Hi
Unfortunately, there is no definitive test for lupus. It is dx'd by a combination of labs and symptoms. That is why it has taken some of us years to get a dx. This site can be very helpful:
https://www.hopkinslupus.org/lupus-tests/

Also, here is some info on drug induced lupus:

The most common medicines known to cause drug-induced lupus erythematosus are:

  • Isoniazid
  • Hydralazine
  • Procainamide

Other less common drugs may also cause the condition. These may include:

  • Anti-seizure medications
  • Capoten
  • Chlorpromazine
  • Tumor-necrosis factor (TNF) alpha inhibitors (such as etanercept, infliximab and adalimumab)
  • Methyldopa
  • Minocycline
  • Penicillamine
  • Quinidine
  • Sulfasalazine

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Cakelady

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 #3 
Also please keep in mind that there hat having a positive ANA kinda doesn't mean anything. My ANA goes from positive to negative and back to positive. It can be frustrating. Also keep in mind that there are between 60-80 different AI's that mimic lupus.
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Robinj

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 #4 
You really need to see a Rheumatologist btw...
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
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