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amknapp65

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 #1 
The kidney biopsy show that I have Lupus nephrosis but the blood work does not show that. Has anyone ever had this happen to them and does that mean either way I have lupus?
Robinj

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 #2 
 Not a lot of info to go on. Are you seeing a Rheumatologist?
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amknapp65

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 #3 
I have not seen a lupus doctor yet. I was diagnosed by my kidney doctor for having an excess amount of protein and blood in my urine. I go to my kidney doctor tomorrow for more information thank you so much for replying
Robinj

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You are very welcome! Keep us posted.
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Robinj

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 #5 
I find this site very helpful....

https://www.hopkinslupus.org/


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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
lrbell

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 #6 
Hi this is lrbell,
I was diagnosed with Lupus Nephritis in August of 2016.  How I was diagnosed the doctors had to do a kidney biopsy; because I went into kidney failure of both my kidneys.  The test they did on me was pretty accurate.  I don't think they would have found out if thebiopsy was not done.

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Lisa R. Bell
Robinj

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Welcome Lisa:)
How are you doing now? 

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
Trinilupus14

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 #8 
Hello,

My name is Onica and I was recently diagnosis with Class V: Membranous lupus nephritis. What should I do?

Onica

Robinj

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 #9 
What do your doctors say?
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
Trinilupus14

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 #10 
They put me on Cellcept and prednisone and a diuretic but eventually they will be lowering the prednisone and increasing the amount of CellCept
Robinj

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 #11 
Sounds like a good plan.
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
Sky

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 #12 
Amknapp65, trinilupus14
It was confirmed by biopsy in 1980 for lupus nephritis. Dx: possibility represents a lupus membranous nephropathy. Occasionally such patients fail to show serologic evidence of lupus initially; the chance that patient subsequently develop such evidence should be kept in mind.
And so the story begins.
Bx in 1985: focal segmental glomerulinephritis consistent with lupus nephritis.
Bx in 2015: no evidence of immune complex glomerulinephritis. No evidence of active lupus nephritis; or changes suggestive of Fanconi syndrome.
My kidneys shut down once in 1986. Was hospitalized and not sure what I was given.
I have only taken plaquenil, prednisone on occasion and started on high-blood pressure approximately 10-years ago.
I would Higely recommend to see a rheumatologist, A nephrologist who is Highly Qualified!!!
Sorry can't go back to your post to see if you have. Do your research, there is always someone here on this post that will send you links. When you have any tests/procedures/
consultations; get the copies of everything.
After over 30plus years w/lupus I'm know being told that I have a lupus anticoagulant dx. And the specialist I saw in April of this year is thinking this is related to my
Stage 4 renal disease. He also stated that he did not think I had Lupus and the joint pain was because I have arthritis!!! When I talked w/ him to go over my labs he said yes I do have lupus but it is not active. I've always wondered why I have been doing pretty darn good with my kidneys. My nephrologist is Extremely noted throughout Michigan. He has not prescribed any harsh drugs which I'm thankful. Some drugs can really do damage to other organs. Sometimes doctors are quick to give you a pill for every symptom you have. And again, do your research in All Medications your given. There's a lot of good ones that have saved many lives. So I'm not telling you not to take medications. This is just my experience with lupus.
Autoimmune disease is extremely hard to diagnose. And lupus can present itself in a multitude of symptoms, tests, etc.
I'm sorry you are struggling with this diagnosis and presenting itself with your kidneys.
If I can be of any help as far as what tests I've had done, don't hesitate to ask.
This is an extremely difficult disease to diagnose so do your research and be persistent with your questions to your doctors and tests you want them to do.
When I write something I go on and on like I'm writing a book...
amknapp65

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 #13 
Wow thank you so much for responding bc yours is the most helpful response ive gotten. Thank you!
Trinilupus14

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 #14 
Thank you so much for the information!
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