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Robinj

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 #1 
WASHINGTON, May 9, 2017 /PRNewswire-USNewswire/ -- Almost half (43%) of people living with lupus responding to a recent poll* indicated that they worry the most about physical inactivity and social isolation due to the debilitating effects the disease has on the body.  Nearly half (47%) of the participants also felt that the impact lupus has on daily living is most misunderstood by their physician, while almost one-third (30%) believed that the emotional impact is most misunderstood. Almost half (47%) of those responding to the online poll conducted by the World Lupus Federation (WLF) indicated they want better management and treatment options available to them through their physician.

http://www.prnewswire.com/news-releases/inactivity-isolation-and-impact-on-daily-life-are-top-concerns-for-people-living-with-lupus-300454340.html

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Mr. Bun

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 #2 
Ty Robin.  good article.  great article actually.

It's funny......I would've agreed....to wanting better treatment options through my Doc......up to about a month ago.  I was asked by my doctor & her husband to speak at a medical forum.  The forum was arranged by them as part of a new initiative through the Medical Association, local media & politicians, in order to get an idea how the patient is impacted by health care delays.  Delays have skyrocketed in Canada, particularly Ontario.

I prepared a speech.  Laid my troubles out for all to see.  Described not only my health issues but how lack of timely medical care had affected me psychologically, physically & monetarily.   

My doctor has been seeing me for roughly over five years.  And yes, she knows my issues.  But until I made that speech, I don't think she truly knew how dramatically my life has changed.  

I went in to see her yesterday.  I hadn't been in since the night I gave that speech.  My mouth & face are swollen due to abscesses. Not only did she see me, she brought her husband in to confer with him.  They were, without question, the most sincere, caring & attentive.... I have ever experienced while in their office.  And my doc called me today to see how I was doing. wow.

(side note) When my speech was over, I had a lovely 84 yr old woman come up to me.  She was telling me about an herbal remedy that helped her husband with his psoriasis.  All of a sudden, she took my hand, stuffed $40 in it.....and told me she didn't want to hear another word about it!!  Before I realized what she had done......she was gone in the crowd.  I haven't been able to track her down.  and I need to.  People like her need to be told just how kind they are.

Ol' Bun is a little loopy lol.  time for my supper of mashed potatoes.

xox




Mr. Bun

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 #3 
and........

I've been reading about the health care problems in the States........they scare the sh!t outta me.  I don't know how you guys cope.  and I'm scared for you guys.
Robinj

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I Agree bun. Ya know it really wasn't that long ago when healthcare was affordable. That was before the insurance companies became greedy. And big pharma became greedy. And pre-existing came into play, as well as HIV/AIDS and the whole system imploded. (before anyone screams, I am not blaming AIDS, I lost my best friend to it)
Insurance protested they can't pay claims and pharma said well these new drug coc ktails will cost big buc-a-roos. And the nightmare began.
EDIT: And I am sure this post will be pulled as usual.....

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Mr. Bun

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 #5 
Robin,  we lost many, many doctors.......who headed south.  Up here in oh Canada, physicians are capped as to what they can charge.  We have socialized health care as you know....which does have it's problems.  However......I have never not gone to emerge or my doc because I couldn't afford it.  I can't imagine having that worry.

So many doctors up here left for the states.....simply because they were greedy.  Are doctors up here wealthy?  yes.  they are. and I say more power to them!!!  If i were to spend 10+ years of grueling study.....I would want to be compensated for it.....and rightly so.

However......the doctors who left.....wanted to be more wealthy than their counterparts who stayed.  simply put......they wanted money more than they wanted patients.  so it left a huge doctor shortage......and patients are still floundering without a family doctor. which causes delays in medical care, causes stress for the patient & causes increased disease activity due to that stress.

I always say "follow the money".  it usually explains why people/companies/politicians do the things they do.
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