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Robinj

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 #16 
Wow! you are lucky to get in so quickly. Best of luck!
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
mayte

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 #17 
Robinj, thank you! 😊 yes.... I have to miss work but I'm thankful that they scheduled my appointment fairly quick!😊
mayte

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 #18 
UhOh, I too started eating healthier.  I eliminated all types of junk food which I love to eat including greasy foods and sugary ones!  I guess I am going through withdrawals!  I think that's why I am feeling a bit down and depressed! I used to enjoy the foods I ate and going out, and doing fun activities but I think that Lupus has taken that away from me.  It is very difficult to be happy! I suffer from anxiety and not knowing if it will get better or worse is a great fear for me!
Does Lupus make us feel depressed? Is that another symptom that we can experience?
Robinj

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 #19 
Honestly? Wait until you are properly dx'd. You know what? it may not be lupus. There are MANY conditions that mimic lupus.
Whatever your dx, you will find a new normal once you figure it all out. If it is, you will most likely be started on Plaquenil, which takes about 4-6 months to build in the system. It is not a quick fix, so I truly hope you don't have it.

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
mayte

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 #20 
Thank you so much Robinj.  I am hoping for some relief, one way or another!  
taffylinden

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 #21 
Mayte, the others have given you excellent advice. I'm glad you have an appointment with a rheumatologist. I, too, was appalled about the way he diagnosed you and even more so that the only med he prescribed was a painkiller. But I also wanted to caution you not to assume that every symptom you have is a result of whatever disease/condition you have. If you ARE diagnosed with lupus, and I sure hope you're not, you'll find doctors tend to do this, too. A few years ago, I ended up having an appendectomy for pain my PCP thought was a lupus-related stomach issue. 

For now, try not to think of this as maybe having a serious disease but more as working toward relief from your symptoms. I know it's hard when you have anxiety issues, but if you focus on something other than the diagnosis, you'll feel a lot better. Let us know how the appointment goes, please. I'll be thinking of you.
mayte

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 #22 
Thank you so much Taffylinden,

All of you have made me feel better about his whole situation!  I feel the same about my doctor, too.  That's why I am not seeing him for this issue anymore.  I think I am so anxious that I think that every single symptom is related to Lupus.  I am driving my husband crazy and this is just the beginning... ugh... and yes... I need to try to think positive and take it one day at a time but it is very hard for me.  I take my meds for anxiety but they are not helping much now.  I will let you know how the appointment went.  I still have to wait 3 weeks but in the meantime, I will try to calm myself down somehow.  

Thank you for thinking of me!  :-)
taffylinden

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 #23 
Anxiety is a beast. It makes you think that if you spend enough time figuring out the what-if's, you'll solve the problem and won't feel anxious, but you find that each what-if leads you to other what-if's which also seem to demand an answer. I don't have anxiety like you do, but I can be a worrier. I've found these helpful:

1. Focus on the facts; stick with the probabilities. An attorney I dated gave me this one. His example: "Your daughter and her husband are driving to see you in winter. You worry about them crossing the mountain pass. But of the thousands of people who cross the pass that day, statistically, only one will run into trouble. There's a 99.99% chance they'll be fine. It makes a lot more sense to focus on that than to worry about the .01% chance they'll have an accident." On Monday, I ran into that exact circumstance, but instead of worrying, I kept thinking about the 99.99%. SO glad I didn't waste time and energy worrying!

2. Visualization. Suppose you DO get a lupus diagnosis. Imagine yourself a year from now, feeling good because the meds are working and serene because you're relieved. Make it detailed: you're making dinner or going for a walk. Focus on the relief and serenity.

3. This is from a random guy who ran the track with me and had anxiety issues: anxiety is really just energy. Take time to experience the energy. Don't fight it: marvel at it. It works!

4. Control your breathing. I'm sure you know this one: inhale for the count of 4, hold for 4, exhale for count of 4. Don't stop after a few breaths. Keep it up at frequent intervals all day. 

It sounds like you should also talk to your doc about the anxiety meds not working well. You may need to temporarily increase the dosage or go on a different med or something. 

Hope something in here helps!
mayte

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 #24 
Taffylinden,
You are very nice and kind to take time from your day to give me this incredible advise. Thanks u from the bottom of my heart. Although, it is difficult to do, anxiety decreases with deep breathing and when thinking positive stuff. I love the example you brought up! I am just like that...it's hard for me to think and stay in the moment. I am 45 years old, and I can remember when I was a little girl during my 6th birthday celebration I began to cry nonstop. They kept asking me what was the problem. Everything in that birthday party was amazing, except that my mind was thinking that the party was going to end and I wanted it to last forever! Funny, I noticed now that I've never lived in the moment. Always thinking about the future....I know it's time to make a change and realize that the present moment is the upmost important one!!!!
Thank you so much! So very grateful for your response! 😊
UhOh

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 #25 
Here's a story that will make you laugh (maybe).
I was recently diagnosed and have suspected this for many years. Right after the dx, I went out with some friends and came home noticing blood on my hands! It looked like busted blood vessels all over my hands. I washed my hands and it appeared to subside but my hands were still red. I was googling it. I thought it was something related to ITP, but all I could find was Yahoo answers about stigmata. It happened again the next day. I was in a panic, my heart racing. I was about to call the Dr when I realized that a Burts Bee's lipstick had opened in my purse and got into my car keys. LMAO. Thank God I didn't call them, lol.
I take anxiety meds too. The anxiety is better now after the Dx because now I'm not really worried about what it COULD be.
Robinj

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 #26 
Got one too!!!
At work and I look down at my hands. They are blue. I am freaking. Drove home and just past the ER. I almost stopped. I got home and googled it. CYANOSIS!!! OMG!!!!!!!!!!!

Realized that I had to go pee, so I went and when washing my hands (while checking out my lips in the mirror), I look down and the soap was all blue!

New jeans. I didn't wash them before I wore them......

smiley: Thgahhh - keystrokes: :gaah

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
mayte

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 #27 
Omg!😁😅 I'm laughing so hard! UhOh and Robinj...those stories are funny. Something I would do! For sure! It's amazing how anxiety wants to control us! I am the same...I jump to conclusions before reasoning about the situation. Ugh....so crazy! 😨😭
Robinj

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 #28 
Anyhoo, it is easy to freak before you have the facts. :)
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
taffylinden

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 #29 
Robin, I did the exact same thing a week ago! Only I was on a date, and the guy says, "Oh, my God, your hands are blue!" I'm thinking, "Oh, no. It's only the third date. Do I tell him I have Raynaud's?" Ha!

jeandennie5

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 #30 
Your PCP is not qualify to accurately diagnose a rheumatological condition. The symptoms you are experiencing can mimic any kind of disease; you cannot be 100 percent sure what is brewing in your body. Ask him to refer you to a Rheumatologist, or find one on your own through your insurance provider manual. You need to begin treatment by a specialty doctor who can help to contain, and even slow the progression of whatever is going on in your body.

A concern heart

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jeandennie
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