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maggiet

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 #1 
My kids are grown, so after 14 years of homeschooling, I decided to go back to work.  I have an amazing job. I can't believe I am being paid to do something that is so much fun! (I'm a breastfeeding counselor) I have been working for two months now, just 28 hours/week.

My problem is that I am so tired when I am home I can barely function. How do you manage life, work and lupus?  I have been diagnosed since 1997.
zest

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 #2 
Hello Maggiet
And hang on because I know you will get encouraging responses!
I know how great it is for you to love your paid job as well as the apparent fulfillment I hear with your "homework"
Hugs
Zest
Cakelady

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 #3 
I used to take naps in my truck and I use a crock pot a lot. If it's just you and hubby at home you might think of easy to prepare meals that's what I do now that it's it's me and hubby during the week.
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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
jna001

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 #4 
I'd make him cook...then I'd love to be a be a breastfeeding counselor!

sweetlee

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 #5 
Just getting off from a six week leave of absence.   Only 4 hours to start, but going to work and all the specialist appointment one has to attend, I am hanging on by a thread with the fatigue.  Coffee helps a little. Afternoon coffee means I can't sleep at night.  Still feel tired regardless of how much sleep I get.  Any suggestions?

Sweetlee
taffylinden

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 #6 
Sweetlee, I can tell you're an upbeat, determined person because you're approaching this as "How do I get more energy?" instead of "How do I cope?" Good for you! Are you sleeping well, not just enough? Are you drinking enough water? Are you getting enough nutrition? As a breastfeeding counselor, I bet you tell women every day how important all those things are, so I assume you can answer Yes to all of those.

If the fatigue is caused solely by the lupus, though, then it IS a matter of coping. If you only have enough energy to do your beloved (and very cool) job plus go to medical appointments, then you're not going to be able to cook, clean, etc. How many hours does your husband work? How supportive is he? Can you afford housecleaners and a grocery-delivery service? Can you order out once or twice a week? You only have so much energy, and your job sucks up a lot of that, but it's also who you are and what you love doing, so I'd give up the other energy-drainers and keep the job.

That's how I see it, anyway.
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