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Lifesclue

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 #16 
Upstater - I never really thought about it but you just reminded me. When I was in Florida a year before my diagnosis, I got some form of sun sickness. I got really sick and fatigued after sitting in the sun all day canoeing. It happened twice on the trip. I wonder if that had something to do with lupus. 
Cakelady

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 #17 
When I am in the sun or when it's hot outside I usually end up in the bathroom floor throwing up. So for me it's just not the sun but the heat has well
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Robinj

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 #18 

(1)    Sunlight

People with lupus should avoid the sun, since sunlight can cause rashes and flares. Some people are more sensitive to sunlight than others, but all people with lupus are advised to be cautious when they are outside. Of course, it would be impractical to completely avoid going outdoors, but try to be prepared. Carry a sunscreen with an SPF of at least 70 and be sure that your sunscreen contains Helioplex, an ingredient that blocks UV-A and UV-B rays, both of which are harmful to people with lupus. Apply sunscreen to all areas of the body, even those covered by your clothes, since most normal clothing items only protect your skin to the level of SPF 5. In addition, carry a hat with you when you know you will be outside. Certain sportswear manufacturers now make hats with SPF built into the material, which may be helpful for people with greater photosensitivity.


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Lifesclue

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 #19 
I know I am not supposed to sit in the sun for long periods of time without sunscreen and I also agree that heat has an adverse effect on me that I have recently noticed. Now I take precautions against getting when I know I am going to be outside most of the day. When I went to Florida, it was a few years before I was diagnosed with anything. I would never have thought to associate the two back then but now I think it might have been related. 

It's weird though because some people comment about my light sensitivity not understanding that I do actually become sick and fatigued from being in the sun too long. I wish people had a better understanding of lupus in general.
upstater

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 #20 
I started noticing maybe 2 summers ago, that my feet and ankles were swelling in the heat/sun - which had never happened before. I might have a few extra pounds, but I didn't feel like I was overweight in the sense that I should have swelling. Also my fingers would swell. I also had my lip swell up - though I had been laying on the beach much of that day (before I knew I had any autoimmune issues). 

I thought maybe my thyroid was off at that point, but everything tested fine. 

So, maybe that was/is related to the issues I am having now?
shutterbug

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 #21 
Still haven't been able to kick my garlic habit. Everyone in my house thinks it's a food group. Thinking back to one of the times that I have felt the worst was after I took some Airborne on a family vacation. I was so sick and my husband told me that it all had to be in my head because there was nothing in it to hurt me. Echinacea was the culprit. I didn't know I had lupus until many years later.
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