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Lifesclue

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 #1 
Hello, my name is Raven. I am new to this forum but I found I had SLE in late 2012.

This all began in 2011 with my diagnosis of lymphoma which is in remission currently. My doctors believe that my SLE, which is focused on my blood, is related to my lymphoma. The doctors believe that one caused the other and that before the recent remission they were playing off of each other and causing multiple issues at one. 

Right now my lupus flares at weird times and I have not gotten used to what triggers it. I am also having other stomach pains that cannot be figured out despite their cyclical nature. We are not 100% sure if it is lupus causing the problems but the doctors are treating it in any way they can. 

I am only 26 and I would really like to better understand lupus and see how others handle the multitude of issues that can come with this illness. 
Lonewolf1987

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 #2 
Hey Raven!
My names is Sharunda! I'm new on here too! I haven't been diagnosed yet but my symptoms just started last year. I'm here to learn too about things that trigger me. Just last week my knee and feet were swollen and I still can't figure out why. To help I've started going to therapy as I can't use my hands for very long periods of time. I know things like stress or pushing your body too much can cause a flare. I'm starting to get to know my limits and when to say enough is enough.
Lifesclue

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 #3 
We can explore the disease and forums together then. I used to get swollen joints when I overdid it. Like my fingers would swell or my foot. Once I figured out my limit it was more manageable but now my lupus presents itself in a different way and I am currently trying to adjust to these new changes. 
Lonewolf1987

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 #4 
Great!!! I usually don't know when I've overdone it until my shoes don't fit! I'm trying to work, go to school and start a Zumba fitness career. My main thing I'm worried about is my memory. I also get headaches a lot. Sometimes when I'm driving, nothing looks familiar to me. Has that happened to you? I know I'm starting to have word finding problems and trouble remembering names and events. Did they tell you what would cause your feet to swell?
Lifesclue

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 #5 
I try not to over do it as well. I currently work and I am out of school for the summer. I also have memory issues but I do not know if it is from lupus, lymphoma, or medication. I also spent some time in the hospital last year for fluid in my lung and they had me on medication that made forget things. All those things combined makes my memory really bad and sometimes I have forgotten faces from my past or names of past friends. I used to get a lot of really bad headaches that lasted for days but they have subsided. I am not that knowledgeable about why feet swell. Usually, for me, it is circumstances such as standing or walking for a long time especially with improper shoes but I am sure there are plenty of other reasons for the swelling. Other on this site may be able to help more with explaining that.
ChanileG

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 #6 
Hello I just wanted to say Hi and It's great to know that I can talk to people going through the same thing as me. This coming September will be a year that I found out I had Lupus. I have had my battles with it over the last year. I am still getting use to the fact that I have to change some of my life style but if its to help me to continue to fighting then I am willing to do so although some old habits are pretty hard to break.  
Lonewolf1987

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 #7 
Hello ChanileG!!!! If you don't mind me asking, how long were you having symptoms before they diagnosed you? Also for me that's such a hard thing to do is break old habits. I love fast food but unfortunately it doesn't love me back lol
ChanileG

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 #8 
Hello Lonewolf1987 sorry for the late reply
I was having symptoms for about 4 to 5 months before I was officially diagnosed. Its been a hard jounery becuz I was pretty active but I haven't been able to go and move and do like I use to becuz I'm in pain alot. Plus I have a 4 yr old who is beyond very active, so thats the hardest part for me as well.

If you don't mind me asking you, how have you now had Lupus? What were your symptoms and how long after were you diagnosed?
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