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jaylitt

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 #1 
Hey all,
My name is Jayson and I was dx with lupus almost two years ago.  I started getting sick in 2012 while working as a management consultant and kept getting really sick (night sweats, body aches to the point of not being able to move, fever that would go up and down). Not to be too blunt, but I am gay and thus thought that these were symptoms of HIV and was too afraid of being diagnosed with that so wouldnt go to doctors and just tried to fight it through. After 6 months of these horrible symptoms and being unable to travel for work, i went to doctors (specifically infectious disease doctors expecting the worst) and it took about 6 months to find a doctor to diagnose me with lupus.  I guess being a white guy in my 30s, it didnt come to anyone's mind. Also, no one in my family has lupus. 

I got on prendisone and plaquenil right away but my symptoms all stayed -- nothing went away and it took about another 6 months to find a good doctor, get on a compound drug that has been effective.

I hate being on meds all the time, and i hate that i get tired a lot and just dont have as much energy. But I also feel blessed because my flares are much less frequent and much less severe (perhaps as a result of it settling into my body or the meds?). I just never know when its gonna flare and it kinda knocks me out for a few days. 

Not to sound so cliche, but my crew doesnt really get it either... like most havent heard of it -- so its frustrating.  Anyway - cool to see theres a mens forum, bec everything out there seems to me female focused!


Cakelady

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 #2 
Hi and welcome

More females are dx with lupus then men and it's hard for others to understand the daily stuggles we go through

We so have some men here but it's mainly women Don't be afraid to ask any questions or if you need to vent then vent most of us on here are good listners

If you are up to trying something new other then the meds we are given look at the UVA 1 thread

Good luck and welcome

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DeBartolo

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 #3 
sorry you need to be here, but welcome aboard  [wave]

do check out the UVA1 thread  [comp]

& since there are so many women here, as a man, try to use these little smiling faces as often as you can - think the girls like it, my theory is, it calms them down hormonally [smile]






Smiley


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Cakelady

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 #4 
Anthony stop with the faces right now
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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
TXgirl

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 #5 
Anthony you make me laugh out loud every morning! Keep putting him in place Cake.
TXgirl

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 #6 
Oh and welcome!
Cakelady

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 #7 
Where's Robin when you need her - thanks TX I do my best
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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
Robinj

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 #8 
Quote:
Originally Posted by DeBartolo
sorry you need to be here, but welcome aboard  [wave]

do check out the UVA1 thread  [comp]

& since there are so many women here, as a man, try to use these little smiling faces as often as you can - think the girls like it, my theory is, it calms them down hormonally [smile]






Smiley



[b81460029901e8036c8b25d7b26fa6b1]

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. 
Cakelady

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 #9 
You go girl
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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
DeBartolo

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 #10 
ahhh, PMS [smile] will need a more potient little smily face to calm you down hormonally then ...
Smiley

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TXgirl

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 #11 
Anthony....your no longer married right?!?! I can't imagine why she didn't invite you over for thanksgiving supper. Just say'n'. Y'all make me laugh.
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