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upstater

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 #1 
This is a great article that really gets at the complexity of autoimmunity and rheumatological diagnosis.

I just saw my rheumatologist again on Monday, and although I am still systemically UCTD (with discoid dx), I believe she knows how to monitor and treat me. 

I had a tremendous amount of anxiety when things first happened and just wanted to know what I had. If I just had that one test or saw the right person, I'd know. Now I know, that my symptoms are real....and I have a rheumatological condition....and that neither MY doctor....or any doctor....can predict my future. Or whether I will stay undifferentiated or whether I will go on to develop SLE, MCTD, on any of the other connective tissues diseases. I can't say I don't still worry. But it's proportionate and I have a better understanding.

https://www.hss.edu/conditions_dealing-with-uncertainty-lupus-diagnosis.asp?mc_cid=92332892cf&mc_eid=c1dd91651e#.U8jsabHbaaU
Marisa

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 #2 


Hi, I have recently been diagnosed with lupus, I can only get an appointment with the rheumatologist in two months time. Any advice on what I can take or do in the mean time? Should I boost my immune system or not?
Robinj

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 #3 
Absolutely NOT. Increasing immune activity worsens auto-immune diseases.
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upstater

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 #4 
Yes...like Robin said, avoid boosting - things like echinacea are a no-no. In illnesses like lupus, your immune system is already on overdrive.

Supplements are a personal decision. There is some evidence that Vitamin D is helpful. I take 2,000 of that, a good B-complex, and high quality probiotics (though have taken those for years). 

Did your primary care physician diagnose you? Do you know what that was based on? I think really only rheumatologists are qualified to make a lupus dx, unless it was a dermatologist by skin biopsy for cutaneous lupus. Autoimmunity is really complex, I have come to find out.

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