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marilynb

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 #76 
For crying out loud robin, you asked what they were treating in Africa, I looked and found more information. You're the one that won't quit. Don't bother following up anymore robin, I can't handle the negativity anymore. I've apologized, and you still dig your little claws in, GOODBYE!!!
Cakelady

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 #77 
Goodbye and good luck Marilynb
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Robinj

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 #78 
As if you can't see that I was being facetious.....
In any event, I am only concerned with the falsehoods that you are posting. No more, no less.

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upstater

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 #79 
Mr. Bun....do you have lupus and dermatomyositis? Or some sort of MCTD? Sorry you're not feeling well right now. Clindamycin is the absolute worst. I took that once for an abscessed tooth and I swear my stomach was never the same.
Mr. Bun

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 #80 
Yep.

& am allergic to everything else. 
upstater

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 #81 
Did they diagnose that by symptoms, labs or biopsy? Or combo?
Cakelady

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 #82 
Why do you care? And why pick on Bun
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Mr. Bun

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 #83 
um....why the sudden interest?
upstater

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 #84 
I am not picking on Bun. I am not sure why you would think that or if you are confusing me with Marilyn?

I am dx as undifferentiated and discoid and trying to learn as much as I can about what is happening to me, which was why I was asking more about dermatomyositis, because that and MCTD is something I am trying to learn more about.
Cakelady

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 #85 
Well why did you ask if she had a dx of lupus ? This is a lupus forum after all. Also if you have spent anytime on the forum you would have seen where Bun has said she has lupus.

I am not in the mood to play forum games today. Bun has been an active part of this forum for awhile. Bun offers up comfort and laughter to those of us having a really hard time. Bun is a very sweet kind person. Back off

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upstater

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 #86 
I know Bun has lupus. I was just trying to understand more about her experience with dermatomyositis....or if she had an overlap disease in combo with lupus. I am in no way questioning her diagnosis. I had just not heard her mention the dermatomyositis before. And I know autoimmunity is complex.

I am just here looking for support and knowledge....and to learn from other's experiences. I know you all have far more experience than me. 

I know you have had some negative experiences with people on these forums, but I can promise you that is not my intent. I am just looking for some people to share experiences with, as I do not really discuss this with anyone in my personal life other than my husband....and I don't want to talk about it all the time.
Cakelady

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 #87 
Then spend time and really read the forum. I can pretty much tell you that everyone on here has told their story more then once
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upstater

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 #88 
I have read the forum pretty extensively.....of course not every post. I had never seen Bun mention dermatomyositis before. I simply asked about it. Isn't that the purpose of these boards?

Again....I understand you have had some people here with questionable motives. And spammers.

I have been impressed by many on here....Bun, RobinJ, Taffy and yourself....and a few others. I am just trying to be part of the community and learn, while not stepping on toes. I know many of your have a lot of shared history.

Since here I learned about Sun Guard wash in, Sunday Afternoon hats, etc. You have a lot to offer.
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 #89 
This ol' Bun is tired.

and on my way to the dentist.  who......has booked 6 people to keep an eye on me during surgery.  This appt. was scheduled to go over the procedure & my medical history with the team that is going to be present on Wednesday.  A great dentist.

Upstater?  I have been scanned, tested, poked, prodded, pr!cked, probed & biopsied up the wazoo (literally).  My doctor keeps telling me how "special" I am to have so many odd maladies. Interns get really excited to see me.  

I get a bit suspicious when asked specific questions.


upstater

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 #90 
I am sorry....I don't mean to pry. I just know it is rare and I was just interested in the perspective of someone who was dealing with it.....not just what google tells you.

I do really respect you all and have been trying to find a community where I feel like I can learn. And share.

When i started having symptoms it caused me a great deal of anxiety. However, learning more and hearing from others who are solution based helps me level out. I also appreciate that humor the you all use sometimes.
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