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IrishLass

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 #1 
I work 2 days a week, 12 hour shifts. 

I have a bowel obstruction and it's serious. I'm seeing a GI Dr. and I've had 1 colonoscopy but the GI Dr. wants to do another one. The obstruction is such that I can't do the bowel prep yet. I have to be gently cleaned out (I'm sorry, it's gross). So he put me on medication to accomplish this. The plan was once this was done I'd have this second colonoscopy.

The problem is that I'm trying to manage this and work my 24 hours a week. The medication makes me very ill so I can't take it the day before I work or on a day I work. And those 4 days that I can't take the medication I end up right where I started with the obstruction. My abdomen is huge, I wake up at 4am to vomit, I can't eat, and I feel about as bad as I've ever felt in my life.

I'm working a hospice case at work right now and this family needs continuity and stability. My nursing supervisor has offered to take me off the case so I can take care of my health but it's a great assignment. The family is very kind, it's close to home, the workload is manageable (when I'm healthy) and I need the paycheck. I'm on disability but I can't live on that alone.

My wonderful Dr. is trying to work with me within my narrow timeframes but he's told me that I'm not going to get anywhere going off and on this medication according to my work schedule and I just continue to get sicker. I was off work this past weekend so I took the medication and now even the medication isn't working anymore.

If I call in sick to work I get somewhat of an attitude from my supervisor (they know I have lupus) and then she has to find someone to fill in for me. The family gets anxious when someone new comes in (I don't blame them) and because we're caring for a human, someone HAS to be there. I don't like putting my office in that position. And it's difficult for my office to find a replacement when someone calls in sick. Yes, people get sick and things happen but I've been hospitalized 3 times in 6 months and my office has told me that I either work my shifts or give up the assignment altogether.

If I give up the assignment I go without a paycheck while I'm trying to get this obstruction taken care of and then professionally I'm left to take crumbs until another decent assignment comes along. That could be weeks. In the meantime I could be working 4 hours here, 6 hours there, 2 hours here, 3 hours there. My schedule would be a mess as would my paychecks.

I can't afford to give up this assignment but my health is declining. I keep thinking there has to be some way that I can work AND take care of myself but it hasn't been working out that way.

I'd love some input.

Cakelady

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 #2 
Take care of yourself. You are no good to anyone if you fall sicker.

If you are having trouble making ends meet while you are off work look at the main page of the LFA. They do offer extra help I. Many ways also look at social services. There is help out there it's time for you to take advantage while you get your self fixed and then you can go back to work.
The family you are working for will more then understand. My father was on hospices last year and his nurse only came in once or twice a week. More if we needed her but if she was on vacation which seemed like a lot my dad did not want anyone else.

There is help out there. You might have to swallow your pride some and ask for help but you are worth it.

Take care

Sending healing vibes your way and lots of hugs

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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
IrishLass

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 #3 
Thank you, Cakelady [smile]  I know you're right.

I'm having tests run tomorrow and then, according to my Dr., we're going to "make plans". I'm prepared to resign from this family if I have to. I'm off work from Thursday through Sunday so I guess I'm hoping that this can all be tied up in a neat little bow by then. I've missed a lot of work before and I made it through, I can do it again if I have to. But I'm still hoping I won't have to.

xoxo Cakelady
Wornwolfiegirl

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 #4 
My dear Irish Lass, you need to take care of you first. That is the most important thing. 

How did your test go?

TAKE CARE OF YOU FIRST!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
IrishLass

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 #5 
The test went well. No cancer or pre-cancerous polyps, just inflammation aka colitis. The Dr. spoke with me within 3 or 4 minutes of me waking up and he didn't tell me what to do next to prevent this from happening again and I was too groggy to think to ask him. I guess I'll make an appointment with his P.A. (whom I really liked) for next week.

Thank you for asking, Wornwolfiegirl [smile]
Marthmaymoo

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 #6 
Bump.......

Irishlass?? Lol....I'm an irish lass too.

Just kinda wondering how you made out.......cuz.....I'm going through the same kinda thing. Yikes.

My endoscopy went fine......but still there is internal bleeding......and....lots and lots of pain in my abdomen. I broke my hip in 2014 (healed up well) and have 4 rods holding my lower spine together. So I thought i had injured my back or hip again....but xrays say no......

waiting on a colonoscopy appt. now......what fun.

Hope everything turned out well for you,

Xoxmb
IrishLass

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 #7 
Hi Marthmaymoo, a fellow Irish lass, [smile]

Things have kind of worked themselves out. I kept taking the medication the Dr. gave me and I kept getting sick when I took it. I'm not really a holistic person but I found a tea that helps with my symptoms so when I become symptomatic I drink the tea and that resolves the symptoms but they invariably come back so I start all over again as needed. I'm not convinced that this will help me in the long run. I feel that it's just a Band-Aid but maybe it'll keep working, who knows?

Good luck with your colonoscopy. They're fun, aren't they?
Marthmaymoo

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 #8 
Well......um....fun?? Lol.....not from what I've heard!!!

Lol.....two of my brothers have had colonoscopies..and they are really enjoying themselves telling me all about it! Brothers......sigh.......i have six of em. Irish Catholic doncha know....lol.

Glad to hear you have improved a wee bit..... I am a tea drinker....but can't stomach green tea......makes me throw up.....but any other tea is very soothing eh?

Thanks Irish!

Xoxmb
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