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wbsangel86

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 #1 
I work full time. I am struggling everyday. My primary care doctor brought up today if I had ever thought about going out on disability. I know he would fill out the papers for me, but the problem is you never know if you would get approved or, if you did, how many appeals would have to be done. I am 29, so I know my age wouldn't help.I couldn't go without making money. I have a family to support. It just sucks...
Cakelady

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 #2 
I believe I was in my mid 30's when I crashed and started having seizures and could not work anymore.

Usually you get denied first. I did. The ssa doctor said he was going to approve me and then the next month I was denied. I was told that 95-98% get denied the first time around. I also filed by myself. Once I was denied I called my works disability person and she told me they do that and then she put me on. Contact with a disability attorney. So I was denied in late January they filed my appeal in feb and all I had to do was answer some questions for the lawyer. They called on Presidents' Day in feb and went over everything with me via the phone and I was approved I. March.

We have had a couple of people get approved the first go around and we have had people who have had to fight for 3 years to get approved.

But if it's something you decide to do get a disability attorney. They will take care of the paperwork and stuff.

But if you can work then do your best to work. My doctor tried for years to get me to go out on disability and I would not. I took naps in my truck at lunch. I used an arm crutch to walk. I did breathing treatments in my office I tried so hard to continue to work. My work could have let me work from home but they did not and I did not have the energy to challenge them.

Only you can decide what's best for you

Good luck

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wbsangel86

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 #3 
Thank you for your reply. It would be nice if their was a middle ground.
Cakelady

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 #4 
It would be great if there was a middle ground
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IrishLass

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 #5 
I went with a disability lawyer and was approved the first time I applied. The lawyer took me on a contingency basis so her fee came out of my back pay from social security.

While I'm very grateful for the disability payments they aren't enough to live on so I work part-time. I can only make so much money a month according to the SSA.
LibBias

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 #6 
Quote:
Originally Posted by wbsangel86
I work full time. I am struggling everyday. My primary care doctor brought up today if I had ever thought about going out on disability. I know he would fill out the papers for me, but the problem is you never know if you would get approved or, if you did, how many appeals would have to be done. I am 29, so I know my age wouldn't help.I couldn't go without making money. I have a family to support. It just sucks...


It is not a good idea to be working full-time and then apply for Social Security Disability. They will likely not approve you. They will think: If this person is able to work full-time, then they do not need Social Security. My doctor told me first to start working part-time for a year, and then he said to stop working completely. At that point I applied for Social Security Disability, and was approved on my first attempt.

Best wishes to you. I know that this is not an easy road.
CntryGrl66

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 #7 

I was just diagnosed this October 2015 of having early Lupus.  I do struggle every morning to get up and go to work as well as struggle through the day.  Some people at work don't quite understand how I feel.  All they know is Lupus is manageable.  I commute to work 1 hr 15 min one way.  I work full time as well and I have a family to support (my son and daughter).  I can't go without losing money and an income.  How much does disability give you once you are approved? 


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Annie  [smile]
Dx'd October 2, 2015
Early Stages of Lupus
Cakelady

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 #8 
It depends on how long you have worked and how much you have paid into it. You can always call the SSA office and they will tell you. However I will caution you that over 95% of people who apply get denied. It is rare for someone to get approved on the first go around. I was denied then approved on my first appeal. But I had a disability attorney which is the best route to go. Some people have fought for 3 years to get approved and some people are still fighting.

If you can work then work. All jobs have stress and all jobs have co workers that do not understand. Having a lupus dx is not the end of the world. I worked raised a family was on the PTA board cheer mom etc. plus had a side business.

Rest when you can and do somethings differently. For me it was taking a nap everyday at lunch in my truck. I had a pillow and a blanket and I slept for a good 45 minutes or if I could not sleep then I rested my body.

Don't give up.

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CntryGrl66

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 #9 
Thanks Cakelady .... it's just frustrating is all.  I have started to incorporate naps during my work day.  I sit at a computer all day so I do get stiff and sore.  When I feel it, I walk around our building once then go back to my desk.  I come in really early in the morning so that I can sleep at least 1 hr and 30 min before I go in.  I also have a pillow and blanket in my car.  I also take a nap at lunch if I need to.  Along with the my Tramadol, it's helped a great deal.
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Annie  [smile]
Dx'd October 2, 2015
Early Stages of Lupus
Aussie

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 #10 
My wish for you Anniie is that once the Drs have tweaked your medication that you will start feeling a whole lot better. You will learn in time that your life has to be handled a little differently but hopefully you should still be able to do the things you have to & the ones you enjoy.(except sun baking) I know you are feeling overwhelmed & anxious but Annie, it's not all doom & gloom. If I could walk on water, I would come & give you a big hug. Fingers crossed that you land the job closer to home. With regard to your insensitive work colleagues, put yourself first & don't let them upset you. You have far more important things in your life.
Cheers....
CntryGrl66

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 #11 
Quote:
Originally Posted by Aussie
My wish for you Anniie is that once the Drs have tweaked your medication that you will start feeling a whole lot better. You will learn in time that your life has to be handled a little differently but hopefully you should still be able to do the things you have to & the ones you enjoy.(except sun baking) I know you are feeling overwhelmed & anxious but Annie, it's not all doom & gloom. If I could walk on water, I would come & give you a big hug. Fingers crossed that you land the job closer to home. With regard to your insensitive work colleagues, put yourself first & don't let them upset you. You have far more important things in your life. Cheers....


Thanks Aussie!!! 

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Annie  [smile]
Dx'd October 2, 2015
Early Stages of Lupus
wbsangel86

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 #12 
Well, I finally had to cut my hours down a few months ago. My boss has been GREAT about my illness and all the times I have had to miss. (3-4 times a month) TODAY I found out the office I work for is closing at the end of February. I don't think I could get a job with having to miss as much as I do for flare ups, fatigue, pain, and also for Benlysta infusions. I am at the point to where I going to have to finally file for disability or try and get another job, but I just honestly don't think I can do it anymore. Anyone have updates or their story the cam share with disability?
Cakelady

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 #13 
SSDI is hard to get. We have had members who were approved on the first go around and we have had others that had to fight for 3 years to get it.

The first thing you have to ask is will your doctor(s) support your claim for disability. If they don't you do not have a chance. If they do then I would get a disability attorney and file with them or have them do the filing. The reason being is they do not get paid unless you win so if they do not take your case the. It means you more then likely have a weak case.

I am not saying this to sound mean or uncaring I am giving you an honest answer. My doctor was after me for years to apply and I did not then the decision was taken from me. I got to sick and was having seizures. I still can't remember much of 2008. The SSDI doctor even told me he would approve me. The next month I received a letter saying I was denied. Talk about being shocked. I did not have an attorney at the time but my work had it's own disability program that you paid into so they hooked me up with an attorney. I received my denial letter on mid to late January they filed the appeal in February and I was approved in March.

I just had to go through the re approval process last December - February of this year.

If you can work try and work. The process of getting SSDI is hard. I wish I would have had an attorney from the start but I honestly was to sick to understand everything. Also I spent most of 2008 in the hospital undergoing heavy nasty chemo to try and knock lupus back in line. And no I am not in remission and never have been

It's a tough decision to make but you will get no where if your doctors are not on board

Good luck

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Glendalegal

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 #14 
HI, the information can be overwhelming and I knew I had Lupus right from the start. I looked on line in 2001 and I was not sure what I was going to do. I had a Rheumy seeing me since 1997 for I had swollen knees and hands that of course got me the usual routine for arthritis and for me it was the beginning of a long list of autoimmune diagnosis.
Today I am covered in the skin lupus and I just go nuts putting calamine on me. The rheumy just now started me with the cellcept and things are slow to help. I live in  Sunny Arizona and I moved here from Boston way back in 1980 for work, so I have chosen this and see no reason to undo it at this date. At one point I was very active in the support group and then it was my turn to stay home and be real ill. 
I was dx with MS way before Lupus and this always seemed to take the lead. I used my work to hide my condition for as long as I could until I was written up for forgetting to respond to e-mails that were the way my large company used for me to get and do work from so many places. I lost my way and took my day off to see the Neurologist and she ordered the MRI. I returned to see her for the grim report and a note to be off from work for a few weeks and weeks turned into months and now months into years. I used up all my funds and filed for disability. I do not remember the interview or exam. I have a copy of the print out and the main statement is " I could not follow directions, my short term memory was unable to handle the tasks that were asked of me. I think I kept asking the doctor and the assistants to "say that again" this got many notes in the report. Today I wear double hearing aides and no they did not change my world for the better. What they do is draw attention when they  notice them after I say "will you say that again." By reading this it  is easy to see how things came in an order that was not going to get me a great result. I contributed to the lengthy way things went wrong. I hid my illnesses for more than 10 yrs, I had others to support and be responsible for and money worked that for me. I did not encourage this at the group, I did the exact opposite, I encouraged others not to cover it up, do not believe this cannot be so, for the longer I did the more ill I got. I know when you look at me you say the famous "But you look fine." well that was then and this is now. Today I cover my entire head, face, neck, arms, back and the rest of me. I have long sleeves on winter and summer, I have a wardrobe that suits me. I have a quiet social life and a family that puts up with me, but they do it with love. I have days when I am nuts and then days when I make sense. What I don't have is the heavy burden  of servicing others, this took my last 25 years to get here. I will not be the best advocate for self love, but once step in my life and you will do it better than me, this I know.

Robinj

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 #15 
Welcome Glenda. [smile]
Thanks for your post.

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