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swimpal

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 #1 
Would you change doctors if the doctor you are going to will not help you get disability? I know Lupus is a disability.
Robinj

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He/she can't help you "get" disability unless you meet the criteria. You would  have to have qualifying issues that make you not able to work. You are posting random questions here and people are giving you some good insight. Any reason why you don't respond to what people are saying to you before moving onto the next question?
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swimpal

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So how would you know what criteria is needed?
Robinj

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There are a few here that are on SSDI due to thier condition. Since no one here even knows what issues you are dealing with, it would be hard to give you advice. I would guess that you could start at the US govt website.
I do know it's not an easy process and many have gone through several appeals before being granted SSDI. And most needed a lawyer.

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Cakelady

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SSDI is a last resort. If you can work then work. SSDI is a headache. Most people get denied and some people have been waiting 3 years to get approved so if you can work then work.

I get that you hurt and your tired etc, but everyone is. Learn to listen to your body and rest when needed etc. I used to take naps at lunch time. It was the only way I could get through my day at work.


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Raglet

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 #6 
Lupus varies a lot from person for person. Some people with lupus can and should work, while others are not able to work. I work 3 days a week - I would go nuts if I didn't work so I have a flexible job with work at home options. So some people with lupus will qualify for disability, and others won't.
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IrishLass

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I work part-time but I'm also on disability.  I had to get a lawyer who specialized in social security disability to help me apply. It was a very long process. 

Go to http://www.socialsecurity.gov
swimpal

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Thanks IrishLass
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HerOuchness

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I can tell you this from experience (and what an experience!!!!) - If you can work - do it. If you know you can't - you'll have to get a lawyer. You'll also need some savings. I had a fat bank account and disability insurance at the time I got sick and a career I'd built for decades, so I had work history and a safety net. You will NEED a safety net because there will be NO money coming in for years. Let that sink in: Years. I say that so you know what you're dealing with. Now, by the time I was granted disability...my fat bank account was a big fat zero. But, I had NO choice but to file. I couldn't walk...and I was "out of it" most of the time and I had 24/7 nursing care.

Disability is NOT easy to get. It's a myth/joke that disability is easy to get. It's not. And, most people cannot live off of it (it's not alot of money).

Now, if you KNOW you cannot work...and only you know this: Then you need to start the process by applying. Then here's what's going to happen -

You'll need at least two doctors that will verify that you are disabled and cannot work (the criteria is very strict):
http://www.ssa.gov/planners/disability/dqualify5.html

If you can't work AT ALL (meaning that you can't even answer phones from a bed to make a buck), then your doctors will fill out several forms and you will fill out mountains of forms (or as in my case...your family). Then, you will be sent to a "Social Security Disability Doctor" and if you have a pulse he/she will find you "fit for work". I kid you not. Then, you will be denied. Then, you'll need to get an attorney. Then, you will fill out mountains of forms and agree that the attorney will get 1/3 of whatever you're granted in back-pay (what you would have been granted monthly from the date you first filed had you been found disabled). Then, you will fill out more forms and go to court where you may or may not be found disabled. There is no appeals process. It's a one-shot deal. Which is why you'll need an attorney.

I hope that helps. I know what it's like to be scared and know the "ship is going down" and what it's like when you can't seem to do anything to stay afloat. 

Disability isn't a cake-walk. It's a nightmare, but that's why it's a last resort. 

Good luck with whatever you choose to do.
SLE 0 Me 37

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 #11 
Quote:
Originally Posted by swimpal
Would you change doctors if the doctor you are going to will not help you get disability? I know Lupus is a disability.


Having a little bit of knowledge about applying for Disability. It isn't your doctor that can "help" you get on Disability. The Disability agency will send you to a doctor/specialist they use-depending on what your application states as per your reason for applying for Disability. I myself am debating internally as to whether I should apply for Disability due to my employer denying me the ability to use a mask to provide extra protection during flu season/winter (here in Illinois) because it isn't in accordance with the company's uniform policy.....if anyone would like to comment on this as far as this being borderline medical discrimination, feel free. I work at Lowe's to be specific. And though I had provided a doctor's note upon returning to work, I was dinged for 6 days no call/no show due to my being unable to call in due to bed rest for the first week home from hospital in April, which most of the time I was sleeping as my body adjusted to the medications I am now forced to use
Cakelady

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 #12 
For years my PCP wanted me to go out on SSDI because I was steadily getting worse. But I had a special needs child still in school and another child still in grade school, a husband 3 cats, 2 dogs and a mortgage not to mention a career that I had worked hard to get.

For me the choice was taken from me. When I crashed from lupus I crashed hard. Overnight I went from not only being to walk with out assistance to having seizures. For years lupus had been attacking my heart and my lungs and now it decided my central nervous system needed to be attacked. I thought I just needed to rest. So my doctor took me off work when I crashed for a month. I crashed the day after thanksgiving so I thought I was just tired. By the end of December one month later I was having seizures that left me stuttering and a BP out of this world. My rhemy was out of the country.

I saw the guy covering for her and he was concerned. When I started stuttering my dad made me go to the ER. The ER did not bother calling my doctor. They told me to rest. That was a s a t u r d a y. On Monday I called the replacement doctor and he was p i s s e d that they did not call him. He said he thought my doctor was back in town. She was but was not seeing anyone till January. I called got her nurse who was shocked when she heard me. My doctor came in and admitted me that night.

That was 2007/2008. In 2008 I tried to go back to work 3 times but could not do it. But I was lucky that my work had STD (short term disability) and LTD (long term disability). Plus I had worked at the same place for almost 20 years and had almost 480 hours of vacation time saved and a lot of sick time saved up.

I filed on my own in2008 with the help of my husband. I saw their doctor in December of 2008. That whole year I was getting cytoxin treatment and was in the hospital every few weeks from 1 -10 days at a shot. the disability doctor told me not to worry that I would get approved.

I was shocked in late January of 2009 when I received my denial letter. I called my STD case manager and she told me most people get denied first time around W T F why didn't anyone tell me. She said she would have a lawyer call me. They sent me a bunch of papers to fill out and sign. Then they called me on Monday Presidents Day. I will never forget that because I was surprised that they were in the office on a holiday. Anyway she went over what I had sent.

Mid march I received a check in the mail. No letter nothing. So I called my case manager and she said she would check and get right back to me. Most disability attorneys have access to the disability data base so they can keep tabs on the progress of their cases. I had been approved but my back pay came before my approval letter.

I did not get to keep my back pay. The lawyer had to get paid and since I did not go before a judge and it did not take years the most he could collect was $5,000.00 The rest and then some went to my STD carrier since they had been paying me.

That's my story. We have had people get approved the first time around and then we have people like Cindy and ChyneTee who have fought for years to get their SSDI. Cindy got her's after fighting for 3 years and had to give the attorney 1/3 of her backpay.

But any money you receive you will have to include it on your taxes so when and if you get approved keep that in mind.

Also everytime you send in paperwork keep a copy for yourself.

Most people think when they get a lupus dx that now they can get disability. It's not true. If you can work then work. There would be days that would come home and crawl right into bed. There would be days that I could not walk from my truck to the house without the help of my husband. Then there would be days that I went right from work to PTA then to a parents Cheer meeting for the upcoming competition.

Also keep in mind that every so many years SSA will want to re-verify that you are still sick and can not work. I just went through that.

I hope what I have written helps. SSDI is not a walk in the park.

Good luck

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lupuscommunity

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 #13 
I took this thread back to where it started to disintegrate into a lot of mindless name calling.   Frankly there was a lot of misinformation posted by a lot of people within this thread.  

Please go to the Social Security Disability program website and read the facts for yourself.  

http://www.ssa.gov/planners/disability

The biggest mistake that people make is failing to prove that they meet the Social Security Administration's definition of disability.  it's not enough to prove that you have lupus; you have to prove that you meet the definition to be declared disabled by lupus, and that your disability is expected to last for longer than one year.   

http://www.ssa.gov/planners/disability/dqualify5.html





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snapster

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 #14 
Quote:
Originally Posted by lupuscommunity


Please go to the Social Security Disability program website and read the facts for yourself.  

http://www.ssa.gov/planners/disability

The biggest mistake that people make is failing to prove that they meet the Social Security Administration's definition of disability.  it's not enough to prove that you have lupus; you have to prove that you meet the definition to be declared disabled by lupus, and that your disability is expected to last for longer than one year. 





Good point

 

Quote:

14.02 Systemic lupus erythematosus. As described in 14.00D1. With:

. As described in 14.00D1. With:

A. Involvement of two or more organs/body systems, with:

1. One of the organs/body systems involved to at least a moderate level of severity; and

2. At least two of the constitutional symptoms or signs (severe fatigue, fever, malaise, or involuntary weight loss).

OR

B. Repeated manifestations of SLE, with at least two of the constitutional symptoms or signs (severe fatigue, fever, malaise, or involuntary weight loss) and one of the following at the marked level:

1. Limitation of activities of daily living.

2. Limitation in maintaining social functioning.

3. Limitation in completing tasks in a timely manner due to deficiencies in concentration, persistence, or pace.

http://www.ssa.gov/disability/professionals/bluebook/14.00-Immune-Adult.htm

 Section B shows the importance of a symptom diary, telling your doc about limitations and letters from friends/relatives detailing your lifestyle showing the limitations.

connerylover

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 #15 
hi, ya'll!! as far as goin on disability goes, for me, i WAS workin as a correctional officer, i tn. while i was goin through the surgeries on my ears for the reacurring tumors.  i'd had 3 nervous breakdowns from that, having to give up so much in my private life; ie swimming, riding horses, and such. then also, in the winter mos, when the barrimetric pressure get just right, i loose my speech. I sound, to me like i've got a mouthful of novicaine, i have to talk very slowly, distinctly, and there are just a few people who can really understand me. there are no symptoms, no early warning, and no telling how long it will last. i can be talking normal, and in a second, it's gone. once, it lasted a whole week. but, while i was working, i got a letter, from an administrative law judge, in nashville, saying i had to report to him on such date. when i got there, of course, it was cold, raining, and spitting snow. GREAT!!! we got in there, and there are a group of people around the table, and remind you, i don't know what this is all about. don't know these people. before the judge starts, i asked him, and he said that it's about my SSDI. i told him that i didn't file for it, and who did?
    he said that my ent and my psych got together, talked about me, compared notes and all, and THEY filed on my behalf!!! can you beleive it!!! all of the people around the table were from ss, irs, unemployment, they even had my military and police records!!  well, the judge asked each person there if i could or should be working. they all said no. he then ORDERED me to quit my job. needless to say, i told him where to stick it. and i was quite grafic!! i had lost my speech, due to the weather, and lloyd (husband), was telling them what i was saying, and the judge put a piece of paper on front of his face, so i couldn't read his lips, so, i knew i was done. but i still fought him. he then told me that if i didn't quit, he was goin to have me arrested and put into protective custody, till i did. that was 1996, and i've been 100% since then. i'm also on medicare.


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