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Robinj

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 #16 
Baseboard can be oil or propane hot water heat as well. :)
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TXgirl

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 #17 
I would avoid any steps and stairs. Keep it one level. If you want an outdoor patio have a nice overhead with fans. One that sun does not shine on you, but you can enjoy the outdoors.
shutterbug

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 #18 
Robin- Thanks! I didn't know about the oil or propane baseboards. I've lived in California all my life and have only seen the electric ones that don't really do much except run up your bill.
LLL

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 #19 
I don't think that you have to purposely change your house setting for lupus or whatever disease it is. Unless you have joints involvement, obviously it would be good to limit your movements. But still, I do not think you need to give lupus or whatever disease so much importance. You will respect them but not give them power. 
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taffylinden

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 #20 
IF she does have lupus--a big IF at this point--then more than just joint involvement is at play. I live in an apartment that faces some woods, so I get no direct sunlight at one end, and those are the rooms where I spend most of my daylight hours. It has no florescent lights, another key factor. But I've been diagnosed. If I didn't have lupus, I'd miss having more sunshine.
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 #21 
Understood. But even if it was a normal person, they will not purposely sit at the room with direct sunlight the whole day either. So the person can adapt to the situation but doesn't mean that the environment needs to be changed. Just my two cents.. of course if your lupus wanted it in a certain manner you should listen to it.
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Robinj

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 #22 
"of course if your lupus wanted it in a certain manner you should listen to it. "

Not sure what that means LLL.... but as I said earlier, unless you are EXTREMELY sun sensitive and need tinted windows or need handicap access, it is no different than any other home. 

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pianist

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 #23 
Don't know about your doctor, but mine would be instantly defensive if I told him I thought I had lupus. He looks skeptical if I tell him I'm in a flare. I don't know that he's that much different from other rheumatologists I've heard of and met. 

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 #24 
Robinj, well that is precisely what I meant in my earlier reply. I didn't think we need to make a lot of changes to the environment to suit lupus.
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Robinj

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 #25 
LLL 
I think what I was getting at is not so much to SUIT lupus, but to suit what you may need in order to be comfortable in your home. Some folks here need accommodations for various reasons. The original poster did not have a lupus dx and may have been jumping the gun about things that may not be.

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LLL

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 #26 
Robinj
Agreed. I think we just have to be comfortable, no matter lupus or no lupus. I don't know but I feel that sometimes the more you care too much for a certain condition, be it lupus, a bad situation, or an unwanted behaviour in someone else, it kind of aggravates them. So I thought unless completely necessary, one should just not try to make huge changes. Well anyhow this discussion may be moot given the fact that the original poster may not have lupus, but is thinking way ahead of time. It's like talking about changing their environment for an unborn baby when you are not even sure if you are pregnant.

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ceal

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 #27 
wow some of y'all were really rude to rclaric who has legitimate concerns and already has other health issues.   I am recently diagnosed after many frustrating years of trying to find answers and was told for years that I do not have lupus when in fact I did and do!

I came here for support and the first thread I see has turned me off completely. To the person who told rclaric to find another thread... wow.. your compassion is overwhelming.   I thought this was a SUPPORT group.       To rclaric: hang in there and do not worry about the grumpy "know it all" who feels the need to correct spelling...
Robinj

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 #28 
Who? Me?

smiley: Thexcited - keystrokes: :excited

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Cakelady

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 #29 
Ceal a support group is not all puppies and sunshine. I wasn't on most of the day yesterday just for a few minutes while I waited for my meds to kick in.

Anyway it's obvious either you did not read everyone's response or if you did read the responses you don't get it. I have been on this forum for many years. If you go into a doctors appoint and say I have this more then likely the doctor will not take you seriously. Also there are 60-80 different AI's out there that mimic lupus. Lupus is very hard to dx and there is a good reason for it. Also rhemys learn a whole mess of different dx's in their specialty. Not all rhemys have seen or even know how to treat lupus. Go bac and read a thread where I put that i worked in a teaching hospital and my rhemy would send students down to see my lupus rash somthey could see it in person and not just from a text book

@LLL can we agree to disagree on this. Robin and I met on this forum well over 5 years ago. She know that I have had to change things up in my house. I can no longer put my plates in the cabinets why I can not reach my arms up to get them down. I broke a lot of plates before I gave in and moved the plates to the counter top. That's just one thing I have had to change there are a lot of others. Slipping in the bathroom and grabbing the towel holder is another one. Not being able to get up 1 small step to get to the bedrooms. Not being able to lift something out of the oven. It's sad but this is my lupus story it's not everyone.


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LLL

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 #30 
@Cakelady Ok understood. There are different challenges for different type of lupus involvement, so perhaps it is hard to advise how to create a comfortable healthy environment at home because the situation may differ. Some may need to not put things at a higher place, some may need most of the rooms to not have direct sunlight, and I totally understand. For me since I have joints and kidney involvement, I buy less processed food and put less salt and flavouring in my food. My joints involvement are less apparent now, but when it happens, I prefer to stay in bed. To each of its own. 
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