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Reid's Gigi

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 #1 
Has anyone with Lupus ever had cosmetic botox injections? I am considering them, but can't seem to get a good answer from my doctor if they would cause more issues.
Robinj

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 #2 
I would think that if you introduce any foreign substance in your body it could cause your immune system to attack and in my opinion, not worth the risk.
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Baker1

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 #3 
I personally would only consider Botox as a last resort to treat my migraines and I really hope it never comes to that. But looking at the Mayo Clinic website, I wouldn't be a good candidate for using Botox anyway because of some of medical issues that were caused by lupus.
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Diane M
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taffylinden

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 #4 
For what it's worth, my ex insisted I get Botox for frown lines between my eyebrows. Even drove me to the dermatologist who did them. Yes, he was that controlling. They did not cause a flare. The lines came back in three months, when the Botox wore off. But I found a way to erase them permanently: I left him. I'm serious: the lines faded and never came back. :)

HOWEVER, I was lucky. Botox is NOT recommended for anyone with an AI disorder.

My son got daily migraines for several years. Docs tried every medication known to man, but  nothing. Botox injections have been a huge help to him, but he doesn't have lupus. 

Maybe if I were getting daily migraines, and nothing else worked to prevent them, I'd weigh the substantial risks of Botox against the potential improvement to my quality of life. Otherwise, I wouldn't get them. I'd save my money and consider plastic surgery if the lines bothered me that much.
Robinj

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 #5 
I would not consider plastic surgery either.....
Michael Jackson had DLE and had countless (plastic) surgeries trying to get rid of the scarring. He ended up a freakish looking shell of himself and as we all know lived the rest of his life a recluse, wearing masks and veils over his face. What a sad, sad outcome.
Way before I was dx'd, I was seriously considering breast augmentation. My (ex) husband was always "attracted" to women with big breasts. Almost got there too and then I asked myself, hmmmm Why the F did you marry me then, you POS???? No big breasts for me and ended up single! WHEW!

 As my derm told me, anything invasive is not an option for folks with Lupus unless medically necessary.

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
Mr. Bun

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 #6 
ya know......anything I have done.....invasive-wise....has thrown me a disastrous curve ball.

Got new upper teeth.......nose started hemorrhaging.  like drowning in my own blood.  needed to have it cauterized to stop the bleeding.

Got acupuncture (didn't have a choice....the pushy doctor dude just said sit back & relax, after I told him my body doesn't like trauma....no matter how slight.)  

this happened....massive tissue bleeding & bruising.

Displaying IMG_2783.JPG

s
o.....anything....ah....cosmetic.....won't be pretty.  at least with me, anyway.
Mr. Bun

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 #7 
I need my lower teeth done......the lowers are ready....I am scared to get them pulled.

sitting home right now with a brutal abcsess.  one of many.  and this one is ........baaaaaaaddddddd.

ouchy.
Robinj

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 #8 
Aww. Bun 😥
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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
taffylinden

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 #9 
Surgery usually does a number on me, too. And acupuncture? They had to remove the needles right away due to bleeding and bruising. I have zero urge to get plastic surgery, but if I were so bothered by something and determined to either have Botox or surgery, I'd probably opt for surgery because I'd be afraid the Botox would make me ill AND trigger a flare. 

Bun, how knowledgeable is your dentist about lupus? what do they do to relieve the inflammation? I'm so sorry you're having such terrible teeth problems :(
Baker1

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 #10 
Bun,I know where you're coming from about being scared to have your lower teeth pulled. I know that I have 2 teeth that will at least need fillings if they aren't bad enough to pull. But for me to ever get a lower set of teeth made, I need to have surgery to remove some bone growths removed. I'm hoping that if it comes down to having surgery they take the teeth out at the same time so I can go through a recovery once.
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Cakelady

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 #11 
I would never do it. Well I might due a breast reduction they get in the way sometimes :)

But Botox no way well maybe if I can not get these migraines under control but for now now way

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Mr. Bun

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 #12 
Hey Taffy,

My dentist is an oral surgeon.  and....very good.  the extractions were wonderful....really....it's just that my body got p!ssed off at the trauma.
He is, and the whole office is, aware of my issues.

they are proceeding with caution...as I am.

oh boy......my face hurts.....lol....gotta do it soon....sigh.

on another note.....I am going in tomorrow....for a full work up at a spinal clinic.  massage.....phsy-therapy etc.  I need this.....for my bones.  I figure it can't hurt...and my employer pays for it.  a win win!!!

I can't wait.....even though my face is a mess lol.
taffylinden

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 #13 
I get a massage every 2 weeks when I can afford it. It helps my circulation issues and is supposed to help calm the immune system. I always leave feeling better. I hope you feel better all the way around tomorrow. 
paml2923

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 #14 
I've gotten Botox for years and years, not for cosmetic purposes but for chronic back pain. It started because of a compression fracture at 40, no fall, no trauma. Of course at 40, doctors get a little nervous that it broke for no reason (except it was discovered that I had severe osteoporosis). For 2 1/2 years they told me it would heal, it didn't and it became chronic, i.e. permanent pain. As a result, my shoulders were up around my ears and my back muscles in constant spasm. At the time, Botox had just been approved for migraines and muscle spasms that were crippling. The beauty of Botox is that it only lasts 3 months and then it is completely out of your system which is why I continue to this day every three months. The chronic pain also caused horrible migraines and so my neurologist also injects me for that. Here I am 14 years later and I have never had an issue with Botox (wish I could say the same for my other meds). My advice to anyone considering it, find a very good neurologist that specializes in migraine treatment, chronic pain, etc. I would never go to a gynecologists office (don't laugh, my last ob/gyn offered it), psychiatrist, or plastic surgeon for Botox. Your doctor needs to know all your health problems and proceed carefully. Although when I first got Botox, I had only been diagnosed with RA but even after my Lupus diagnosis, it continues to give me great relief.
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