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Cakelady

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 #1 
Hey guys it seems that 2017 has hit a lot of us a lot harder then other years.

I have talked to a few of you and we all seem to be in the same boat. I have never had so many migraines has I have this year. It used to be with the season changes I would get one or two but now it's 3-5 times a week. Then there are the stomach issues. And now I have this skin condition which came from no where. In addition to the migraines, stomach issues, skin issues I either can't sleep or all I can do is sleep. Is anyone having issues now that they didn't have before ?

do you guys feel my pain? I am really getting sick of this diease

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taffylinden

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 #2 
No new issues, but all the old ones have returned to visit like the Ghosts of Flares Past. 

I'm sorry, Cake. You've really been a trouper. 
Cakelady

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 #3 
I almost feel like giving up
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Baker1

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 #4 
My allergies have never been so bad and I think that there are new ones too. I sleep like 10 to 14 hours a day or I'm up all night. In the last few weeks I have started to lose my balance and on Memorial Day landed face down in the hallway just outside my bedroom. Now I have a bruised arm, rug burn on my face, and just about every joint in my body hurts.
I'm supposed to be watching out for my mom, who is actually doing very well after her stroke 3 years ago, not have her trying to get me up off of the floor.

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Diane M
"I was chasing my dreams, but tripped over reality and busted my head on the truth."
shutterbug

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Baker- that's horrible. Falls are the worst. Cake- my issue is that my dry eyes seem to get horrible about this time of the year. It is messing with my vision. Luckily my annual appointment with my eye doc is in a couple of weeks. Somehow my light sensitivity has gotten worse and if I can't be in and out of a store in about 15 minutes while being totally covered up, I'm paying for it for days.
Baker1

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I figure one or two steps farther down the hall and I probably would have hit my face on a doorknob. So I consider myself pretty lucky at where it happened. Also would have been easier to get up if I had shoes on for a little more stability instead of being barefoot.
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Diane M
"I was chasing my dreams, but tripped over reality and busted my head on the truth."
Cakelady

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 #7 
In addition to the migraines I am pretty unstable on my feet. Then with the migraines my stomach becomes upset and I don't want to eat and that starts a whole ball of other things
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taffylinden

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 #8 
Here I am, still awake at this ungodly time with nausea and vomiting. Before a couple weeks ago, I hadn't had this for so long that I thought I was done with it. Hah. 

Cake, what's causing the instability on your feet? Is it part of the migraines? 
Cakelady

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 #9 
Not sure I have been unstable on my feet for a while it just seems like now my legs give out more and more. This morning my head is pounding and my nose is all stuffed up. It's supposed to rain today. This back and forth from warm weather to cold is just no good
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upstater

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 #10 
Sorry everyone is not feeling well.

Not feeling well today either. I have the worst headache I think ever....and nausea. I was in the sun much of the day yesterday, though with lots of sunscreen. It was a work function, so I didn't have too much choice. I have also gotten hormonal headaches in the past, so not sure if that's at play either? I had a hysterectomy, but still have ovaries and they still seem to misfire periodically. So hard to tell what is what.
taffylinden

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Well, now I'm not sure my tummy issues are lupus-related. Hope this isn't TMI, but I coughed up blood that I'm pretty sure is coming from my sinuses. There was enough of it that it could be what's been making me nauseated. Why my sinuses would be bleeding, I have no idea.

Cake, if the migraines have been keeping you from eating or holding down food, could the instability be from that?

Baker, wow, glad you weren't hurt as badly as you could have been. 

Upstater, do the hormonal headaches cause nausea? It's not a migraine, is it? It does sound like it could be from the sun exposure, even with sunscreen, a hat, etc. I take it your employer doesn't know about your auto-immune situation? I hear you about the ovaries. I made the doc leave one in when I had a hysterectomy several years ago. They ran an ultrasound recently that showed it's still firing like clockwork, even though I'm past menopause age. It's kind of pathetic,happily producing ova that have no place to go. I want to tell it the war's over. Go home. :)
upstater

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 #12 
Taffy/Cake - it does seem like a bad time for sinuses, right now. Regardless of where in the country you are. Air is damp. Air is dry. Weather is shifting. Whatever it is, it's unpleasant. 

Taffy....It might be hormonal. My breasts have been swollen and painful and I have been night-sweatish (which tends to happen around that time). I wish mine would give up too. But they seems to do their thing, though not sure it's always regular. I did have a cyst recently, but it went away, so that seems to show they are still doing something. Even though my blood levels show I am in a menopausal range....but I guess those can fluctuate quite a bit depending upon the time of the month.

My boss does know, and I am sure if I spoke up I could have stayed out of the sun more. But I was the event photographer - which was voluntary - but it kept me running around outside, because it was a picnic. 

taffylinden

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Upstater, that was nice of you to volunteer, but sounds like you'll need to volunteer for indoors stuff next year. :( 

I had the menopause from hell. It went on and on, with no sign of my cycles stopping or even slowing down, and they were a nightmare. Estrogen helped but didn't stop the heat tsunamis (way longer than hot flashes) or the deep freezes I was in sometimes. My gyn referred me to an endocrinologist, who said everything was normal. Lupus meds helped quite a bit. My rheumatologist said SLE can affect the hypothalamus, the part of the brain that regulates body temperature. I've known other lupus sufferers who also suffer from drenching night sweats and/or severe chills.  Honestly, before I had the hysterectomy (for severe adenomyosis), I thought I'd become the only patient at the Happy Oaks rest home who had to send out for sanitary supplies. :) I'm still on low-dose estrogen.  
upstater

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 #14 
Well, still have a headache, not helped by the fact that I had my mammogram yesterday and got a call at 6p last night that they saw an abnormality and I have to return for more views and an ultrasound. And when I called them to schedule this morning, they were like - the earliest we have is 6/20. I told them I could not possibly wait that long, so they called "downstairs" and got me in Monday morning. I was really hoping they'd be able to do it today.
Cakelady

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 #15 
First I am not trying to down play what anyone here is going through but we got a call at 3 am from my brother in law he has been getting chemo and radiation. So I quickly showered and went to the hospital ER by his house. It's an ER I am not familiar with. I spent most of the day there only to fight traffic to get to the bank the grocery store and the pharmacy. I thought to keep dinner quick and fast since I didn't think I would be awake much longer. Hamburgers on the grill and tator tots in the oven. Hubby burned the tots. I fell asleep between 6-7 pm. And now it's 4:34 am and I am only up because of the animals but I feel like I have been hit by a truck. The minute hubby gets up I am going back to bed

And my brother in law was doing good with his cancer treatment but OMG the radiation which is on his neck has turned his neck black he can't swallow not even water he's lost 70lbs in 2 weeks because he can't drink or eat and doesn't want a feeding tube. I almost didn't recognize him when I saw him. We spent a very nice day over 12 hours in the ER


Ok I am done complaining

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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
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