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Heidirenn

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 #1 
Hello, I recently had a skin biopsy (the biopsy that just takes a week or so, etc, I don't think the 3 week one, if that makes sense).  Dermatology called back with my results and said that the results were "consistent with lupus".  I have had two patches on my upper cheeks (not psoriasis like, but almost more under the skin) for about two months and they have not responded to the creams I tried using or oral antibiotics.  They have been getting a little bigger, too.  What I am wondering is whether you can get false positives with skin biopsies?  I will be seeing a rheumatologist to do more testing to see whether it is just affecting the skin or more systemic.  So far, I would think it is more just affecting the skin.  Anyway, just wondering if you know of a biopsy ever being wrong/false positive when showing to be consistent with lupus. Sidetone: I also have psoriases (but never on my face) and also had Graves disease about 14 years ago and had radioactive iodine.  My aunt has lupus, just FYI.  Thank you!
Robinj

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 #2 
The only thing my skin responded to was Clobetasol. It is a high potency steroid.
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upstater

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 #3 
I think with skin biopsies, the things they see related to lupus are fairly specific - I know there are things like "interface changes", etc.... When I had mine, it was to figure out if it was psoriasis or lupus or something else. I asked my dermatologist if the test would be very specific one way or the other and he said it would. And it came back as discoid lupus. 

My scalp spots have responded to Betamethasone Valerate, which I understand it one step down from Clobetasol. I have what I think it a spot of the same on my nose and have been putting the Betamethasone on it and I think it's helping. I think I didn't recognize what it was right away.

Lupus can look a lot of different ways on the skin to the average person. I know I googled images and there is a wide variety out there....even among discoid.
Heidirenn

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 #4 
Thank you so much - I am probably a little in denial that my biopsy showed lupus...hoping for a false positive, maybe?  But sounds like it is pretty specific.  I have both Betamethasone and Clobetasol at home for my psoriasis but was given a lighter one for my face...can't remember the name off-hand but starts with an M. :) It is in the other room so I can add the name later. Thank you for the info.
upstater

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 #5 
I only had my "lupus biopsy" 2 months ago....so it's new to me too. But I was glad it was specific, because I had some funky bloodwork and had been bouncing around trying to find a knowledgable rheumatologist and this helped bring some clarity....even though my systemic issues are "undifferentiated". 
Heidirenn

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 #6 
Yes, next stop after dermatology is the rheumatology appt, date tbd...hopefully they will call Monday...I am not sure who I will see yet.
upstater

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 #7 
I think it's helpful to have the biopsy results when you go to the rheumatologist. Make sure they send them over or bring the report with you.

The first rheumatologist I saw mumbled about rosacea and then the second time I saw him he said "dermatitis". Thanks dude....technically that's right....since itis = inflammation and derm = skin. But it's a bit simplistic ;-) He didn't even want to entertain anything else, despite having 2 positive ANA's at that point.

The second one was convinced it was psoriasis.....because I had a nasty toe nail. At least he was nice.

That's when I gave up on local rheumatology.

I hope you find a good one right off. And actually, I hope you don't really need one!

Robin - do you see a rheumatologist or just a dermatologist?
Robinj

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 #8 
Dermatologist
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Heidirenn

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 #9 
O.k. thank you so much for the feedback - My apologies that I just saw your reply now.  The dermatology center I saw seemed great (biopsy the first time I was there as the patches on my face seemed suspicious), so hopefully rheumatology will do tests, say that it is just affecting the skin (not that I want any type, but rather than systemic) and send me back to dermatology.  
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