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Cakelady

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 #31 
I wasn't going to comment anymore but.....

Most MD's will look at you like you are crazy for trying it especially if you are a new patient. Also you can OD on it or have adverse affects like Taffy did. I have said it before and I will say it again. It's not the cure all everyone thinks.

I have a friend on another forum who OD'd after trying it and had to be rushed to the hospital. It's legal where she lives. It's legal where I live but even medical grade cannabis has issues because it's not regulated. It's not like in the 60's and 70's it's way different.

I have been with my rhemy for years but if I told her I was going to try it I know for a fact she would look at me differently. Here in California you need to have a medical problem but your doctor doesn't sign the form and put you in the data base you go to either one of the pop up shops where you fill out papers saying why you think you need it and believe me the number of people that come in there that have nothing wrong with them but want a card so they can legally have it is overwhelming. They collect your money and you wait to see a doctor. It's usually a retired doctor that just needs extra money or it's a psychiatrist who wants extra money. They don't take your blood pressure they might ask you a couple of questions based on your paperwork but they have 5 minutes max with you. And now I am even being told you don't need to go down there you can find it all online and have your first order delivered in under an hour.

I am sure it helps some people just like plaquenil helps people etc. but it's not a cure all and each state is different. But before you go telling your doctors what you are up to think long and hard. Some might not want to treat you anymore because they don't know how you will react with the meds they are giving you verses the cannabis

Taffy in no way shape or form is this an attack on you. But you need to see to from all sides and your reaction to the cannabis could be and more then likely the result of you need trying the right one. We do have forum members who use it and went through a lot of different stains before they found the one that works best for them.

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treehugger71

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 #32 
Cannabis is a schedule I drug, one of the things classifying it as such is that it is viewed as having no medical benefit.  We, the people, and even medical professionals, know this is not true.  The drug is used in so many countries for medical purposes and even in KY, where it is illegal, there is a drug that is a cannabinoid, in pill form, that is used.  I don't know how the medical community is able to make these meds, unless it is a synthetic cannabinoid.  

I tell my doctors everything about my lifestyle, I wouldn't want to omit my use of cannabis, if that makes sense, regardless of whether they looked at me crazy or not.  None of my doctors have cared or batted an eye about it.  Cannabis is so much safer than these pain killers that seem to be given away like candy, or they are around here anyway.  We have a serious pain pill epidemic in KY with an alarming amount of overdoses.  The overdosing on cannabis that someone mentioned, I have used and been with people who use for 30 years, worked with substance abuse for 20 years, that is the very first time I have ever heard of someone overdosing on cannabis.  Sorry to hear that happen.  

My doctorate is actually in counseling/substance abuse and I have 20 years experience in the field...none of my studies or experience, not have any of my colleagues expressed any major concerns about cannabis.  As a matter if fact, one cannot meet criteria for much treatment if you are only using cannabis.  
Cakelady

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 #33 
Quote:
Originally Posted by lizardlady View Post
I have a question for the group. Have any of you tried medical marijuana for fibro pain? I've heard it is helpful with the pain and doesn't have that drugged out after affect the next day. My state legalized it for medical purposes last year. I'm thinking of asking my pdoc about it. Might sound weird to ask him, but I trust him the most to monitor my meds.
I have tried it and of course it's going to work differently for different people. I have used the CBD oil because I am very med sensitive and even the edibles were too much for me. I tried my friend's who has a medical card, prior to our state legalizing it.
Once it was legal, I got the oil, but without the medical card, I can only get a certain kind. I stupidly didn't think I could overdose on it- boy was I wrong. Ended up in ER thinking I was having strokes when I kept blacking out and came to in the floor. In the ER I learned that even tho the state legalized it, possession is still a federal crime (???!?). I felt really really stupid having a doctor tell me this at the age of 39. He sent my mother out of the room so that I could be told this and I felt like a total busted teenager.

Here is the person who posted it on another forum.

Not everyone knows everything. I know what goes on in my state and cannabis is abused just like everything else is.

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taffylinden

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 #34 
As always, you speak from a caring place, Cakelady. You worry about the rest of us, and while I wish you wouldn't because it's probably bad for you, I so appreciate your caring, and you raise some good points.

I think one BIG issue with cannabis is that since it's not federally regulated, there are no dosing instructions or safety studies. While I'm shocked that anyone would think that you can't overdose on a drug many people use to get high, I won't judge that woman because who knows what some well-meaning friend told her? And maybe she's easily confused. I'M confused as to why she was asking about medical marijuana when she's med-sensitive and had such a terrible experience with cannabis oil. Seems like a really bad idea. Maybe that's why the ER doc made a big thing out of it being illegal, as she clearly should not use that stuff. 

The thing is, you just don't know how you'll react to cannabis until you try it. That's true of many Rx and OTC drugs, of course, but there's more information on them. The federal regulations keep cannabis from being tested and studied. Who knows what effective meds could come out of its study?

BUT I'm the first to say I'm an anomaly when it comes to weed, as I am with other medications. That's why I'm not much use to either side. 

I'm very, very grateful cannabis is keeping my friend out of severe pain when nothing else worked. I'm glad others get relief. Though I'll never use it again, I wish the feds would let researchers study it.  




taffylinden

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 #35 
Oh, one more minor thing: the subject of this thread kind of bothers me. Cannabis can't cure lupus. Nothing can cure lupus.
Robinj

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 #36 
Well, for what it's worth, you are right. Nothing can cure Lupus.
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Sky

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 #37 
Absolutely Robin, spot on. Like I said in my previous post. It's not a cure. Whatever works for people struggling with trying to feel better; go for it. You know your own body more than anyone else.
Robinj

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 #38 
Guess I missed your previous post. Maybe it was deleted? Anywho, thanks for your vote of confidence....
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Sky

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 #39 
Yes it was deleted. You are welcome but no need. We are all here together.
Robinj

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 #40 
Well, some of us are...
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taffylinden

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 #41 
 I HOPE we're all together. Sometimes communications get messed up, and once in a while we get a truly terrible troll. Remember that guy who was asking for money for his supposed wife who supposedly had lupus?  Except he contradicted himself and didn't know much about lupus. Why would anyone ask for money from the people suffering from the disease? The trolls who hide in sheep's clothing like that are the worst, and sometimes it takes time to find them out. But there's such a good core group of people here, and at least 90% of the others (more if you don't count the SPAM) are good people with good intentions. 

I don't know what I would have done without all the support I've gotten here. And now I'm tearing up because Anthony was one of them. I can NEVER repay all the support I got when I lost all vision in one eye. If Cake is the heart of this group, and she is, Anthony was the brain. Robin is the spirit, if that's OK with you, Robin. I'm the pancreas. :) Sometimes it still hits me how unfair it was that we lost Anthony like that. I guess that's selfish. He's at peace now. 

Sorry. Got sentimental and didn't mean to jack the thread. 
darla627

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 #42 
I have read so much about Anthony did he die of complications from lupus?
Cakelady

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 #43 
Kidney diease used to be the leading cause of death in people with lupus but Anthony's lupus was medical induced lupus. I have also talked at length with someone at the LFA about this. Unfortunately the leading cause of death in people with lupus is heart issues or heart diease.

For me I have fluid around my heart a lot my blood pressure is high no matter what the doctor does. But then again heart diease runs in my family. But he also take a lot of pred so .........

I think everyone should be aware

But has for Anthony he died in his bed either from a heart attack in his sleep or he died of natural causes in his sleep. So I kind of like to think of it has he went to sleep and then drifted off.

I miss him everyday I think about him almost if not everyday. When there is a movie on that he would like or I have read a book etc.

I can honestly say without anthony,robin and wwg, lucie and a few others I would have not made it through my dad's illness nor his death. I don't know how many times Robin came to my rescue in the middle of the night when I was having a melt down.

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Robinj

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 #44 
I, also miss Anthony and think of him often. His last year of life should have been here, on this message board. Unfortunately, that is not the way it worked out. He was crushed when he was removed from this board and at this point, I can only hope that he knew how much he was loved, respected and so important to the very thing he spent most of his time doing.... helping folks with lupus.
One day, and I am sure not in my lifetime, his legacy along with Dr McGrath will be the forefront for lupus.

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taffylinden

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 #45 
Well said, Robin.
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