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Smiller13

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 #1 
Hi all,

I was dx with fibromyalgia about a year and a half ago, but the more i read about lupus, the more i feel that they got the dx wrong. Initially I had a positive ANA test, but it was low and the doctor dismissed it as a normal variance. I have been treated with cymbalta, which doesn't do anything to help my pain. Periodically, I break out in a rash across my nose and cheeks, which is unresponsive to acne treatment. I have severe stomach issues which seem to coincide with my pain/rash flares. I was hoping to post a picture of the rash to get some input, but I don't think I can post a picture here. Anyway, I would appreciate any input/feedback anyone has on how I can move forward. I have an appointment with my rheumatologist in about two weeks.
Robinj

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 #2 
Have you thought about having a biopsy on your rash?
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Smiller13

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 #3 
I didn't realize that was an option. Thank you. I will mention it to my doctor.
Robinj

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 #4 
You are welcome.

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
LupieD

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 #5 
Please forgive the horror looking back at you. Lol. I'm posting this so you can see how my "rash" looks when I get it. When I think of a rash I think of raised bumps, itchy, etc. but that isn't how mine get. I just get super red and, often, only on one cheek. Typically, I get the rosy cheeks when I'm starting to flare.

Robins suggestion was great. My Lupus dx came from two skin biopsies. My ANA is rarely positive.

 photo 21400ca5-7dc9-4463-93c9-78583ab57ed2_zps67f8bee1.jpg

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Wornwolfiegirl

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 #6 
Hi

I think everyone gets a different rash. Wow Lupie D that is a red rash. Mine is similar at times and other times not so. I get bright red on my upper chest. All of us are different.  Smiler  it takes more than a positive ANA to dx Lupus.  I am sure you are eager to have an explanation for what is wrong, just know Lupus is not a great diagnosis to get especially if they are not sure.  It took several years to get my diagnosis I was dx. undx. dx, undx and then diagnosed.  Had I had the time I would have taken care of my insurance needs.
Auntie Peeb

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 #7 
Yep, that's what it looks like! Cool rags help me when it gets angry. I make sure my doc knows I'm in a skin flare and treat the flare and am good to my skin. Cool, cool, cool...not ice!

Let us know how things are going. Getting used to the diagnosis and treatment can be a wild ride. You will get through this. There will be gentler times ahead. You are not alone...

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Cakelady

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 #8 
LupieD you are still beautiful
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redhigheels

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 #9 
Hi everyone, First thing frist, lupieD you are very beautiful. I can see that lupus affected everyone differenrly. I have lupus now 15yrs and never gotten a face rash but I have gotten them on my legs. I was diagnosed with lupus through a biopsy of my leg.
Smiller 13, Good luck to you and I hope that you get some answers soon.
marilynb

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 #10 
I finally found your picture again LupieD, that's exactly what my rash looks like, but not as bright. Do you put cold things on it too, that feels so good. Then wait a couple minutes & rash feels hot again, then you touch your cheek but it feels cold. That is just too weird.
realhousewife

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 #11 
I have a malar rash that was diagnosed by both a dermatologist and a rheumatologist. I opted not to get the biopsy, since my rash occurs only on my face in the typical butterfly pattern. My rash looks very bright and red like LupieD posted, and it also feels very hot to the touch. Cold things would feel wonderful on my rash!

My rash was first diagnosed by my dermatologist, who looked at it with a magnifying tool and was certain my rash was malar because of the little red dots that she could see in the rash. She said those dots are plugged hair follicles that are classic for malar rash. While my rheumatologist is not as well-versed in skin rashes, she also examined my rash and noted that it indeed spared my NL folds and agreed with the derm that it was malar.

Since getting diagnosed, I have been using a topical steroid 2weeks on/2weeks off and that has helped with the inflammation tremendously. I actually just started my first dose of plaquenil yesterday, and that is also known to help calm the malar rash.
SallySmiles

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 #12 
My rash looks more like someone went across my face with a red tipped marker - little red dots. Classic mask that comes and goes at will. Under stress they can expand or spread a pink wash across my face, but not as brightly as some.
I have lived with it for fifty years.
I have had total strangers come up to me and ask if I have Lupus - hey, we can recognize each other. Long long ago I decided that itʻs ok, the red spots donʻt exactly blend with freckles, but they are there. Rather than hating the wolf itʻs easier to let it howl.

Sunshine and flourescent lighting can literally make the spots pop! Hello - red dots all over the place.
Stress is even worse and as a Lupie prone to anxiety there is plenty of self induced stress just from worrying about it.

Be beautiful and shine on.
Cakelady

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 #13 
Bumping this up because it shows the lupus rash







Note: Please excuse any misspelled works or grammar errors. I have CNS lupus and brain lesions and use a program to help me type

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Cakelady

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 #14 
Once again bumping this up to show the lupus rash but you have to look through the posts to see it.






Note: Please excuse any misspelled works or grammar errors. I have CNS lupus and brain lesions and use a program to help me type

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Running Momma

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 #15 
I know this is an old post, but does the rash include the nose? I was recently diagnosed and my face is red on the nose, cheeks, and sometimes forehead and chin.
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