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wmigletz

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 #1 
I have been in remission for 18 years and I am thinking about getting breast implant. I am not sure if it is safe and I am afraid the surgery will trigger Lupus flare. I would like to hear your views and opinions on this.    Thanks.  
Aussie

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 #2 
Gday wmigletz,
You lucky duck being in remission for 18 years, good for you. I can't help you with your question but if you use the search bar on top of the page & type in breast implant, you will find a thread that may help you..
Good luck with whatever you decide to do.
Cheers...
Robinj

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 #3 
What does your Rheumatologist think?
I would definitely consult with your docs. Putting an implant that is not medically necessary may be quite a risk.

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DeBartolo

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 #4 
since you used the term “augmentation,” will assume this isn’t being considered for any medical reason

from what i know, surgery of any kind stands a decent chance of reawakening your disorder, simply because lupus patients don’t tolerate stress of any kind very well

also, there was a hot debate for many years that silicone implants were actually causing lupus & other autoimmune disorders ... but don’t think it was ever proven ... that said, not sure if it was disproven to everyone's satisfaction either

bold idea: try to be happy w/ what you have, which is a very nasty disease in full remission + what-ever god gave ya


"31 Ways to Have More Fun With [what god gave you] Every Day"   ..... [the censor would not allow the word 'b o o b']

womenshealthmag.com

best

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Smith&Lesson

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 #5 
I strongly advise against it, and started a thread a few months ago telling my story.  At this time, I can also add that after all the stuff mentioned in that post, they are now both rippled so they don't even look good anymore. For almost $20k, one would expect perfection!  Originally, I paid about $6k, but it was more expensive to fix the 2nd time bc of the strattice -$13k, and the 3rd surgery was free for us, and probably only bc I had not been dx'd w/ SLE yet...  I lost so much breast tissue, that if I were to do a removal, they'd be even smaller than they were originally!
Baker1

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 #6 
Right after I was dx'd in 2010, I had read an article from the Mayo Clinic or one of the other big research hospitals that stated that people who worked with silica (silicone) or mercury tended to have a higher risk of being dx'd with lupus. At that time I had been working with silicone for 8 years. I'm with Smith&Lesson and would advise against it. I would really hate for it to trigger a flare.
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BrennaSimonSays

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 #7 
You've been in remission for 18 years!? What's your secret!?

I am 23 years old, and was diagnosed when I was 18. After loosing over 20 lbs since my diagnosis, when I looked in the mirror, I no longer recognized myself. When I was 21, I had a breast augmentation. This was not an easy decision to make since my SLE was not in remission, but my Rheumatologist and Plastic Surgeon both felt confident that I was healthy enough to undergo the procedure. Thankfully, they were correct. 

It was the best decision I have made in a long time. No complications, and only had one minimal flare afterwords. 

If you decide to do it, make sure you have support at home to help you for at least 3 weeks. 

Good luck!
Robinj

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 #8 
Quote:
Originally Posted by DeBartolo


bold idea: try to be happy w/ what you have, which is a very nasty disease in full remission + what-ever god gave ya




Absolutely :)

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When the first baby laughed for the first time, its laugh broke into a thousand pieces, and they all went skipping about, and that was the beginning of fairies. [Tinkerbell]
wmigletz

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 #9 
Quote:
Originally Posted by Aussie
Gday wmigletz, You lucky duck being in remission for 18 years, good for you. I can't help you with your question but if you use the search bar on top of the page & type in breast implant, you will find a thread that may help you.. Good luck with whatever you decide to do. Cheers...
 

Thank you Aussie.  I will check it out.  
wmigletz

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 #10 
Quote:
Originally Posted by Robinj
What does your Rheumatologist think?
I would definitely consult with your docs. Putting an implant that is not medically necessary may be quite a risk.


Robinj, my rheumie suggested me not to pursue it as she is afraid that my body may reject the implant and it may cause a flare.   On the other hand, she said that the implant can be successful and I will be fine without a flare.    Unfortunately, you never know the outcome.  
Cakelady

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 #11 
But are you really willing test your body? Meaning you have been in remission for years maybe you have forgotten what a flair feels like or not being able to move etc? Do you really want to risk it?


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wmigletz

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 #12 
Quote:
Originally Posted by DeBartolo
since you used the term “augmentation,” will assume this isn’t being considered for any medical reason

from what i know, surgery of any kind stands a decent chance of reawakening your disorder, simply because lupus patients don’t tolerate stress of any kind very well

also, there was a hot debate for many years that silicone implants were actually causing lupus & other autoimmune disorders ... but don’t think it was ever proven ... that said, not sure if it was disproven to everyone's satisfaction either

bold idea: try to be happy w/ what you have, which is a very nasty disease in full remission + what-ever god gave ya


"31 Ways to Have More Fun With [what god gave you] Every Day"   ..... [the censor would not allow the word 'b o o b']

womenshealthmag.com

best


Debartolo, my rheumie said evidence shows that silicone breast implants do not cause lupus.  I have been wanting one but at the same time I don't want to cause trouble especially after having a long period of remission.  I had bad flare up prior to my remission.  I was paralyzed.  I was able to walk again with the help of acupuncture and Western medicine.  It was a miracle.  You are 100% right.  Be happy with what I have. Thanks.

wmigletz

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 #13 
Quote:
Originally Posted by Smith&Lesson
I strongly advise against it, and started a thread a few months ago telling my story.  At this time, I can also add that after all the stuff mentioned in that post, they are now both rippled so they don't even look good anymore. For almost $20k, one would expect perfection!  Originally, I paid about $6k, but it was more expensive to fix the 2nd time bc of the strattice -$13k, and the 3rd surgery was free for us, and probably only bc I had not been dx'd w/ SLE yet...  I lost so much breast tissue, that if I were to do a removal, they'd be even smaller than they were originally!


Smith&Lesson,   It is a mixed feeling.  I am excited to get one but at the same time I am afraid that I will be in much worse condition with breast implant.  I really appreciate to hear opinion/advice  from someone who had done the procedure.   My family has said to me..  you have been doing well with your Lupus, please don't rock the boat.    Thanks.
wmigletz

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 #14 
Quote:
Originally Posted by BrennaSimonSays
You've been in remission for 18 years!? What's your secret!?



BrennaSimoanSays,  my secret is acupuncture and staying away from the sun. I am 42 years old. I was diagnosed when I was 18.  I had three flares up prior to my remission.  The last flare up was really bad.  I was paralyzed when I was 24 years old. Lupus affected my central nervous system.   For the first six years after being diagnosed with Lupus, I was in denial and didn't take care myself.  I didn't wear hat or anything to protect me from the sun.  The sun triggered my flare up.  I was in China for a year to receive acupuncture treatments. Acupuncture helps treating my Lupus and put my Lupus in remission. I am able to walk normal again.  Thank you for sharing your story. I am glad to hear that your procedure was successful. 
Smith&Lesson

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 #15 
At my last appt in March w/ the breast surgeon, she mentioned injecting fat in the future to minimize the rippling appearance. I was suddenly hit with some thick brain fog and did not feel it was the time to tell her I have lupus. I only mention this to you bc that is a less invasive, alternative to breast implants to possibly consider.  Again, in retrospect, had I known I had lupus, I would have just loved my god-given body and done nothing to alter its appearance! Please take your time in making your decision, as it is you who will have to deal with the consequences (and your family since recovery from surgery(ies) takes its toll on everyone at home, and the possible financial impact of expensive revisions). 
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