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jakscs82312

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 #1 
Hey everyone! It's been a while since I have been here.. Ive finally been able to go back to a somewhat normal life. Things are starting to settle down thankfully and getting used to my new life style. I had a question though. I heard being on birth control can be dangerous especially having a blood clotting disorder like antiphospholipid syndrome. Does anyone know anything about this? Id appreciate some advice please.. thank you!!!
meg

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 #2 
I know that part of the risk of being on birth control pills is blood clots.  I would imagine that APS would increase the risk.  I would talk to either my PCP or gynecologist about it  There are other birth control methods available like the new IUDs being offered.  Most of those work by interfering with implantation, though I believe some work with releasing hormones.  There are infection risks to those.  I had a doozy and wonder now if it had anything to do with lupus.

Also, the LFA has information on it here: http://www.lupus.org/answers/entry/what-types-of-birth-control-can-i-use-if-i-have-lupus.

Mary

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jakscs82312

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 #3 
What about other forms of birth control? Like depo shot?
Cakelady

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I think the best thing is to ask your doctor or the LFA nurse. You can send her an email and she's pretty good about responding quickly


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Tigger1219

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 #5 
I had Mirena inserted three years ago. Diagnosed with lupus, APS and Sjogrens last year. Rheum said to keep the Mirena as it was the best option for me but not to use the pill, ring, shot, etc.
flowerpower84

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 #6 
I an using the mini pill now. Only in my 2nd week and its been ok so far. The gynecologist would prefer me to be on the IUD or nothing at all. But she said the mini pill was good because of no estrogen and no migraines. I'm kinda scared of the IUD so she is having me try the mini pill for a month. I go see my rheumy next week. She may tell me to stop it. Not sure. I really don't want to be pregnant so all of this stresses me out.
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CBK

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 #7 
I was on the IUD prior to getting diagnosis and was taking a pill for reduce a cyst. My rheumatologist says I need to stop taking the pill because of the conflicting effects of the estrogen in the pills. I decided to get off everything. IUD is out and no more pills. Of course I discuss this with my Gyn. Which she had no problems about it.
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