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taffylinden

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 #1 
I'm about to cry "uncle" on this fatigue stuff. I had to make a run to WalMart today, and it was probably the florescent lights, but I am now incapable of doing anything except sit here. It's all I can do to sit up. As some of you know, I've had issues with the lupus meds I've been on. Aside from Plaquenil, methotrexate, and Cyclosporin, what Rx meds have worked best for you for fatigue?

Thanks, lupies!
wings65

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 #2 
Prednisone.
taffylinden

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 #3 
Thanks, wings65. I didn't think of prednisone. I'll have to mull that one over. I get every side effect known to woman on that one: insomnia, palpitations, mood swings, anxiety, weight gain, acne. I was on it in November for asthma, and I couldn't finish out the 7 days--caved after 4. 

Did it keep the fatigue at bay for a long time? How long were you on it? 
wings65

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 #4 
I've been on and off Prednisone for years. I'm currently not taking it, though I have a full bottle of it. I have a love/hate relationship with that medication. While on it, I gained weight and suffered insomnia, but I was no longer fatigued. I was like the energizer bunny - I just kept going and going, with no pain, no stiffness and walking like a healthy 20 year-old.

I did have palpitations, but I also have palpitations while not on the med. I didn't suffer any mood swings, but did have some uncharacteristic behavior...like deciding to bake a cake at 3:00 o'clock in the morning (delicious), just hours before having to leave for work, or lying in my bed thinking I should rearrange my bedroom furniture (again, in the wee hours of the morning). I got out of my bed attempting to do just that, until my palpitations intensified, and I rapidly came to my senses. I have bulky furniture. No way could I move it on my own. I had so much energy that I also decided to paint my bedroom. Actually purchased the paint. Now, mind you, during all this time, I was tapering off Prednisone.

I'll just say this: I have three cans of paint (unopened), the color of which I no longer care for; I've lost a lot of weight, partly because I'm not currently taking Prednisone, but I'm also no longer eating lunch several times a week at my favorite diner (I'm now retired). Fatigue has once again reared its ugly head, but it's not so debilitating that I can't get out and about on occasion.

I hope you can find something that you can tolerate and gives you some relief which, in my case, is always "temporary" relief but "relief" nonetheless.

Wishing you the best.
taffylinden

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 #5 
I had to chuckle at your 3 a.m. activities. I mean, why NOT rearrange the furniture or bake a cake? It's interesting that our body and mind processed it as energy, while mine processed it as anxiety. I wouldn't have moved the furniture, I would have WORRIED about moving the furniture. Your way is preferable. I did notice my decision-making abilities seemed to evaporate, but I chalked it up to lack of sleep. 

Good for you for losing the prednisone weight! I'm finding it tough. I've always worked out daily come heck or high water, but the fatigue slams makes that impossible some days. I push myself pretty hard during workouts and usually burn off between 500 and 800 calories. But I've never been able to eat very much. For years, I stayed the same healthy weight by eating under 1000 calories a day and burning off 400-500 calories. I know you can ruin your metabolism by eating so little, but in my case, I didn't eat like that to lose weight but to maintain. My thyroid is fine, so it must be genetic.

Thanks so much for your advice and your kindness!
darla627

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 #6 
taffy have you ever tried imuran it does not effect anxiety it helps w/ joint pain and fatigue
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