Lupus Message Boards
Register Latest Topics
 
 
 


Reply
  Author   Comment   Page 2 of 2      Prev   1   2
Wornwolfiegirl

Avatar / Picture

Contributing Member
Registered:
Posts: 318
 #16 
Hello Shanti, Ashley and Callie

How awesome Shanti you reached out and found a few others around your age.  I am glad you posted and it is terrific that you guys responded.  Hate to admit I am an old fart.
When I was in my teens I was diagnosed with endometriosis.  I felt so alone, suffering with horrific pains through out my cycle and essentially being a menstrual cripple
Little did I know that those with endo are at high risk for of these other lovely autoimmune diseases.
Shanti I am glad to hear that you are going to college. Are you in a state school?  You may want to inquire about a 504 plan.  This is federal legislation, and does end with high school. People get 504's in their employment. It is easier if you are in a school that receives tax payers money.
What is your major?

Good luck to all of you. As someone who use to be on this board use to say "stay strong"
Sunflowergirl94

Junior Member
Registered:
Posts: 1
 #17 
Hi!
I'm 21 and have been diagnosed with UCTD. My rheumatologist was certain I had lupus from my symptoms but I came back negative on bloods. I've found it difficult to find a support group online for UCTD, do you guys have any advice?
XxSunflowergirl
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,203
 #18 


[wave][image]



many get a UCTD  dx when their immune system messes up in particular ways & present the same sort of symptoms…the names don’t really mean much as long as you’re getting some treatment, whether it’s asprin or fish oil.

because of the difficulity in diagnosing SLE, i recently read it now takes the avg patient 7 yrs to get a confirmed dx…which thankfully seems to be improving ‘cause yrs ago many reported it took 10 yrs on average.




__________________
jakscs82312

Avatar / Picture

Active Member
Registered:
Posts: 59
 #19 
Sorry you're going through this terrible disease .It really sucks and sometimes we just need someone to talk to that knows what we are going through! Im 20 and just got diagnosed with lupus on monday .If you ever need someone to talk to, im here!
bethanyholmes

Junior Member
Registered:
Posts: 6
 #20 
Hi! My name is Bethany and I was diagnosed with lupus at age 16. I am 18 now, and was just hired as a writer for Odyssey. For my first article, I wrote about my lupus. It's an open letter to mother of children with lupus. It would mean the world to me if you would share my link on your page and encourage others to share it as well. I'm hoping to bring more awareness to lupus through my writing. Thank you!
https://www.theodysseyonline.com/an-open-letter-to-my-mom-mother-of-daughter-with-lupus
DeBartolo

Avatar / Picture

Senior Contributing Member
Registered:
Posts: 3,203
 #21 
Quote:
Originally Posted by bethanyholmes
Hi! My name is Bethany and I was diagnosed with lupus at age 16. I am 18 now, and was just hired as a writer for Odyssey. For my first article, I wrote about my lupus. It's an open letter to mother of children with lupus. It would mean the world to me if you would share my link on your page and encourage others to share it as well. I'm hoping to bring more awareness to lupus through my writing. Thank you!
https://www.theodysseyonline.com/an-open-letter-to-my-mom-mother-of-daughter-with-lupus


Smiley

__________________
Previous Topic | Next Topic
Print
Reply

Quick Navigation: