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shanti234

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 #1 
I would desperately like to get in touch with someone around my age dealing with Lupus or someone who was diagnosed around my age I think that would really help me cope with this. I was diagnosed back in August and I just really having a hard time with all of this. Specifically meeting people who have had to deal with this at this stage of their life not later in their 30s or 40s.
Cakelady

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 #2 
Hi and welcome I was dx in my mid twenty's. We don't have a lot of young people come on here because it takes a long time to get dx. My daughter has lupus and she was dx when she was 16. She was having issues for years. They would not have really looked at lupus if I did not have that dx and my sister.

The best advice I can give you is to rest when you can.

So once again welcome

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shanti234

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 #3 
Well thank you for your response. It's reassuring to hear that there are people who get diagnosed that early because I never hear about it.

I hear that advice a lot and lately all I seem to be doing is resting so I am pretty that's not a good thing. I am in college now and today I slept through all of my classes. I just feel very exhausted and nauseous eating and drinking plenty of water does not help at all. 
Cakelady

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 #4 
You know you might be a little depressed. And what your feeling is ok. We all go through it. The one thing about lupus is that it affects everyone differently. You just need to learn to adjust. It's not easy but you have to make your self do things.

Be up front with your teachers and counselor about your condition they may be able to help you out. I used to take naps at lunch time, It was the only way I could get through the next 4 hours at work plus take care of my family.

Hang in there it will get better.

My sister has lupus and has very few issues, my daughter is now 18 going on 19 and she goes to school and works. It can be done. But when someone first gets a dx they think there life is over and it's not. Don't let lupus win fight back.

We are all here for you.

Take care

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The bond that links our true family is not one of blood, but one of respect and joy in each other's life
shanti234

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 #5 
Thank you very much.
abbigraddy

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 #6 
Hi Shanti! I'm 20 now, I was diagnosed when I was 15. It really sucks being diagnosed so young- I often feel isolated because I had to grow up so fast and my priorities are so different from my friends close to my age. I haven't met very many lupus patients in their teens and twenties either. I'm also putting myself through college right now, which can be really tough! It seems like we are in very similar situations- I'd love to talk to you about it more, I'll private message you if I can figure out how [smile]

Take care!
Abbi
IrishLass

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 #7 
Abbi,
 
That's how you show support! Leave the GoFundMe page at home and share stories with another young lady dealing with this disgusting disease.
Amkhamavong13

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 #8 
Hey, My names Ashley from So Cal. Im 24 and I had lupus since I was 16 1/2. For me it is a tough journey because the lupus also caused my kidney's to start failing so im on dialysis too. im also trying to find people around my age to talk to about this.
Robinj

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 #9 
Welcome Ashley! [wave]
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shanti234

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 #10 
Hello Ashley,

I am glad you posted a message we're looking for the same thing [smile]. I 'll send you a message directly and maybe we can talk.
Amkhamavong13

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 #11 
THANK YOU
Quote:
Originally Posted by Robinj
Welcome Ashley! [wave]
IrishLass

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 #12 
Hi Ashley, welcome! [smile]
jillybean111

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 #13 
I'm 22 and I was diagnosed almost 5 years ago, I moved recently and can't seem to find a support group in my town. I never went before because I didn't want to be the only person my own age. It's hard being young and diagnosed . 
Aussie

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 #14 
To all you young ones that answered Shanti234's call, you are wonderful young caring people & I am sure you will all benefit from each other's experiences.
Cheers ...
CalliePAD

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 #15 
Hi there! I am currently 24 but was diagnosed shortly after turning 20. I literally felt like my life was over, I had to drop out of college because my body cannot handle it. I couldn't and still can't keep up with my friends and their active lifestyles. I understand completly what you are going through. Feel free to message me, having had lupus for 4 years now I am more accepting of it and can maybe help you learn to accept lupus.
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