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Kathryn3

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 #31 
That was the last time I saw him . I actually thought about writing him a note telling him why i was leaving his practice but in the end hust let it go. And no, he didn't offer any alternative solution .
Kathryn3

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 #32 
You are right Mr. Bun . I understand that Dr's probably get frustrated with patients,diagnosing themselves off of the internet but they need to concede that the patient could actually be right and they did the research that maybe the Dr. should have been doing regarding their symptoms
taffylinden

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 #33 
Kathryn3, after the arrogant rheum refused to listen to me or look at my previous doctors' notes and diagnoses, I DID write her a letter. I was not rude--bad idea, as that may make you feel better but would anger him so much he wouldn't heed it--but I did plainly spell out why she could no longer be my doctor. Maybe this way she wouldn't treat other patients as shabbily. The other thing you could do is to go to healthgrades.com, where you can rate that doc and leave comments. 

And as Bun said, it's important to adopt that attitude of "I know I'm no doctor" and also to NOT insist you know what you have. Someone could go into the doctor and say they had pain and pressure in the chest and trouble breathing and, from reading the internet, insist he was having a panic attack, when in reality, it's a heart attack. Also, since it takes even doctors years to diagnose lupus (when it is lupus), it's obviously not an easy thing. 
Dolphin

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 #34 
I'm debating doing a letter to my first rheum. By telling another doctor I'm a difficult patient, they interferred with my ability to get treatment. They also just terminated me as a patient immediately and didn't refer me to another rheum.  My fear with writing a letter is that the rheum  takes it out of context even if I am very respectfull in it and tells other doctors I am vendictive as "I wrote a hatefull letter." Too bad I can't put fliers around that say come to free medical marijuana evalations with the doctors name (ha ha).
upstater

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 #35 
I thought about writing a letter to the first rheumatologist I saw. Largely because he was rude and upon my second visit had no idea what he had ordered or what my follow up was. "If I didn't call you, your labs must have been normal." So I had to ask specifically about results. Oh....ANA was 1:320 - not really normal. I asked about the pattern and he mumbles "speckled and centromere". He texts someone. He explains nothing. I didn't like him the first time and liked him even less the second time, so I just asked for a copy of all my labs as I made a mental note to never return. As I read the labs in the car, I could see my ANA was listed as speckled only. Not centromere. My sed rate was elevated. He was utterly unprepared when he walked in the room and knew nothing about why I was there. I asked him about a rash and he said "dermatitis" and previously "rosacea". Skin biopsy ended up saying "discoid lupus". 

After seeing my current rheumatologist, she did more labs and a few more things popped up. She put me on the Plaquenil and now I feel like I am doing something protective/proactive....instead of simply waiting for the next shoe to drop.

It irked me that he treated me so lightly....and was so unprepared upon my second visit.

I think I wrote the letter in my head several times on my commute to work. But ultimately I just left him a crummy review on health grades ;-)


Kathryn3

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 #36 
upstarter    I did the same thing . It was all written in my head multiple times 
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