Lupus Message Boards
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Introducing the National Resource Center on Lupus
This first-in-lupus online and multi-media collection is intended to empower, educate and connect all people affected by lupus.
7 1 Information about our new Nat...
by Cakelady
Important Advisory for Message Board Visitors
Words of caution regarding information posted to the message boards.
1 1 Words of Caution.
by lupuscommunity
How to Use These Message Boards
Learn how to set up your new account and create your profile so you can use these new lupus message boards.
4 4 Rules of the Message Boards
by lupuscommunity
Welcome and Introductions
Are you new to the boards? Introduce yourself and learn more about the other members. Do you have questions that are specific to your part of the country (i.e. need a rheumy in Chicago?) If so, ask them here.
2390 261 big day
by Moiraine
Recently Diagnosed with Lupus
Have you been recently diagnosed with lupus? Here you can chat with others who are also adjusting to living with lupus.
1486 125 Feel Healthy but diagnosed wi...
by Running Momma
Lupus Symptoms
Here is where you can share the signs and symptoms you are experiencing and pose questions about their potential meaning or relationship to lupus.
5235 494 So Many Questions???? Positiv...
by Cakelady
Tests and Procedures
What are the different tests (for example, blood and urine tests) and procedures (for example, skin or kidney biopsies) regarding lupus? Are you about to have a procedure, and are not sure what to expect? Or, have you lived with lupus for a long time, and have experienced many different types of tests? If so, are you willing to share your experiences with others? Then this is the section for you.
1214 140 Hard skin with IV poke?
by shutterbug
Lupus Treatments
Here you can discuss the various types of treatments for lupus. What has worked for you? What hasn't worked for you? What have some of your challenges been?
2253 244 Plaquenil and Photosensitivit...
by Robinj
Coping with Lupus
This message board is for those who want to share their techniques for coping with lupus. Or for those who are seeking guidance as to how to cope with lupus.
3863 347 Remission
by Robinj
Disability, Insurance and Social Security Issues
Are you eligible for Social Security Disability? How do you apply? Are you having problems with your insurance? What do you do if you’ve been denied disability benefits by Social Security? Share your advice and experiences here.
399 18 Health Care
by taffylinden
Lupus in the Workplace
Having lupus while holding down a job can present a number of challenges. Do you tell your employer that you have lupus or do you keep it hidden. Are your co-workers understanding about the imitations lupus imposes or are you subject to discrimination or skepticism when you feel bad. How do you balance work, family and your own health needs? Share advice or pose a question.
208 19 Teaching with Lupus
by Bookchick
Women's Issues
Here you can talk about a wide variety of topics such as: breast augmentation when you have lupus; sexuality and intercourse; hormone replacement therapy; pregnancy, fertility and oral contraceptives; and annual exams and mammograms.
490 68 Lupus and IVF
by Smith&Lesson
Men and Lupus
Talk with other men who are living with lupus.
71 10 any other men with lupus on t...
by ross1138
Children, Teens and Young Adults
Talk with other children, teens and young adults who are living with lupus.
58 9 Athletes with LUPUS
by Cakelady
Caregivers of People with Lupus
Are you a spouse, parent, child, family member or a friend who takes care of someone living with lupus? This is your space to chat with others who are also caregivers.
181 12 Take care of yourself.
by Motty3
"Lupus Knows No Boundaries e-Report"
The report brings together firsthand experiences of people with lupus, their advocates and those who treat them.
2 1 Read the e-Report on the glob...
by Cakelady
Lupus in the News
Have you heard lupus discussed in the news? Or has it been mentioned on TV or the radio? You can discuss what you’ve heard here.
329 70 Pfizer, Lupus Research Allian...
by Robinj
General Health News
For discussing health information that is not directly related to lupus.
785 116 Maine doctor creates affordab...
by Robinj

What's Going On
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Topics: 2,159, Posts: 22,746
Please welcome our newest member, atehy